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What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can provide valuable perspectives for other navigating similar journeys.

  1. Mestidone

    1. Prednisone

      1. When I was first diagnosed, I received a 5 day course of IVIG. I would also take Pyridostigmine 3x daily and Neostigmine 3x daily.

        Now, I get IVIG every 3 weeks, Rituxan every 6 months, and Mestinon 4x daily.

        1. On a scale of 1-10, with 1 being the worst and 10 being the best, how much would you rate on average how much your symptoms are under control?

          - Jodi, Team Member

      2. For me, a 5 day round of IVIG followed by prednisone (I think it was 60mg a day), mestinon (I forget exactly how much I was taking per day), and CellCept (2000mg/day). Got my symptoms under control to where I stopped the mestinon 8 months later, had a thymectomy 11 months after my first crisis and diagnosis. Since then I weaned off the other meds one by one over the next 3 years after my thymectomy and just last month finished the weaning period of CellCept. So far no flare of symptoms 😀

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