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What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can provide valuable perspectives for other navigating similar journeys.

  1. Initially I had the classic symptoms of MG-double vision and one droopy eyelid. I was diagnosed very quickly (about 3 weeks after double vision started) and have an amazing medical team. My neurologist started me with pyridostigmine. I started with 30mg 3 times a day, went up gradually to 120mg 3 or 4 times a day, and have now cut back to 90mg. My double vision went away after 3 weeks and hasn’t returned. I’ve since developed some other symptoms but for me the pyridostigmine definitely helps. I take a lactaid and some plain unflavored yogurt in the morning before my 1st dose and it helps a lot with the GI symptoms.

    1. Mestinon

      1. Prednisone 50 mg now 1 or 2 mg

        1. I'm taking Pyridostigmine its helping open the eye , but I still have some double vision , not as much as I had when I first was diagnosed in 2024, it effects my right eye and on that eye I also have a wrinkle on my retina membrane that makes my vision blurry plus I have macular degeneration so a eye patch doesn't work for me I can't switch eyes because my vision is distorted, so I got prisoms that work great , I still have to rest my eyes if I use them a lot because they are very dry Neurologist want to try me on prednisone but my pcp told me to avoid it if I could because I have copd and when I have a flare up prednisone short term is what they use to treat it she said the more I take the larger dose I' all need and it has some pretty bad long term side effects.

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