What was the first treatment your doctor prescribed for MG?
Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can provide valuable perspectives for other navigating similar journeys.
My neurologist prescribed pyrodostigmine which was worthless-,did not help at all
I'm sorry to hear you had a frustrating experience with pyridostigmine. It can be incredibly disheartening when a medication doesn’t provide the relief you were hoping for. Have you had a chance to try another treatment since? Jodi, Team Member
Mestinon and prednisone
Was just put on them. I found out on11/12/2024 I had gmg I was in crisis. They did plasma exchange went home after 10 days still weak then 12/02/2024 another crisis did IVIG just got out12/11/2024. Still have some weakness just trying to learn my limits. Meds seem to work so far. We will seeHey there! Welcome to our community. We are delighted to have you join us. I'm really sorry to hear about the challenges you've been facing. I'm sending you compassion and support as you navigate this new journey in your life. Please feel free to reach out if there's anything about MG that you need clarification on or require any resources. We're here for you. I'm glad to hear that the medications are helping so far. Just remember to be kind to yourself during this recovery process. Jodi, Team Member
Steroids - Predisolone
Mestinon
what is Mestion ? Mestinon, known as pyridostigmine, is a medication primarily used to treat Myasthenia gravis. Here is an article with information: https://myasthenia-gravis.com/clinical/examining-mestinon
Jodi, Team Member
