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What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can provide valuable perspectives for other navigating similar journeys.

  1. I think this post illustrates the problems that the medical world have in treating MG. In my case I was diagnosed 6 years ago and initially prescribed Pyridostigmine ( Mestinon) and I was free to dose myself up to 6 pills per day and I used them, I continue to take them but a rate of 5 a day . My symptoms were double vision and my head dropping on to my chest after a very small amount of exercise of any kind with what was in effect a muscle lock. After resting for approx 20 mins this eased.
    The Mestinon fixed my eyes so then we moved on to Prednisolone with a steadily increasing dose at one point 70mg every other day. This fixed my head and neck muscle locking issues. currently I take 20mg per day on average. After a while in association with a reducing prednisolone dose I was prescribed Azathioprine, currently taking 150mg daily. As far as I know I've had none of the possible side effects other than reduction of bone density and minor blood abnormalities . I would add I am physically much weaker than I was but perhaps in an odd way I can lift straight up by my side, one armed in a straight vertical lift 18KG or so, but If I try to lift a fraction of that on a tray with both arms I simply can't do it. I would add I am in the UK.

    1. Mestinon, but it was horrible. It caused diarrhea and did not provide a steady relief. It would start off great then wear off before the next dose. At the time I was traveling for work and it just wasn’t what I needed. The doctor put me on Imuran 200 mg and prednisone 5 mg. No more MG since. I had to get off the steroid as long term use was causing problems. Still no MG symptoms for now!

      1. IVIG

        1. Mestinon

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