What was the first treatment your doctor prescribed for MG?
Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can provide valuable perspectives for other navigating similar journeys.
7 months into this journey. After a few weeks of a droopy eyelid, lab tests confirmed MG. Neurologist prescribed Pyridostigmine (Mestinon) and stated with 1 30-mg pill daily. Eyelid resolved nicely, and by Day 3, I went up to 2 30-mg pills. Unfortunately, that is when "all h*ll broke lose". Horrible bladder cramping and retention, (requiring catheterization which lasted months until a surgical procedure corrected it). Discontinued Mestinon on Day 4, and was replaced with 10 mg prednisone. Cutting back to 7.5 mg daily. Eyelid still good, but some blurry vision. Remains ocular, and maintaining thus far!
I was diagnosed two years ago. I had speech that sounded like I had a stroke and swallowing issues. Sixty mg of generic Mestinon was prescribed and helped immediately. Diahreah was an issue but now I take a probiotic before I eat and the Mestinon after. That has helped. I did IVIG infusions for four months, but there were side effects. Two other medicines also caused side effects. The Mestinon works the best, and I am also on 10 mg Prednisone.
Mestinon
My gMG started out as only ocular. My neuro-ophthalmologist prescribed Pyridostigmine with which I had minimal success. A few weeks later I met a neurologist and was prescribed prednisone. This solved the droopy eyelid in a matter of days, but had bad effects (weight gain, angry). He did not have any experience with other treatments so I stayed on prednisone. Changed neurologists and went on IVIg treatment . . . this did not work and am now receiving Vyvgart.
