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Read conversations, start a discussion, and connect with others about myasthenia gravis.

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Unusual MG Symptoms?

Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which I still have). I had an almost cancerous...

FeaturedActive 7 days ago

How do you balance exercise and MG?

We all know exercise is a key part of being/getting healthy, but overexertion is also a key part to triggering MG symptoms. Is there any tips or hacks to balancing...

Active today

IVIG Side Effects

IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...

Active yesterday

Muscle and neck pain

Does anyone elsr suffer from muscle and neck pain? I feel the weakness in limbs but the pain really bothers me....

Active yesterday

Weight loss

Is losing weight caused by MG? I'm not doing as much exercise due to muscle weakness but I am losing weight...

Active yesterday

What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can provide valuable perspectives for other navigating similar journeys....

Active yesterday

What Test(s) Were Used to Diagnose Your MG?

What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis?...

Active yesterday

Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...

Active 3 days ago

Travel Considerations

My best friend is 87 y.o. He wants me to do a cruise with him on a 160 passenger ship to Antartica. I have been diagnosed with MG since last...

Active 4 days ago

Leg and Foot Cramping and Pain

Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience leg pain? Describe the sensation, and if you...

FeaturedActive 4 days ago

Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?

Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered you the most improvement, and what doses? -...

Active 4 days ago

What about portable oxygen if I have a breathing episode?

I was wondering if there is some kind of canned oxygen like athletes use that I can use when I travel, and if it would help if I get out...

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