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Read conversations, start a discussion, and connect with others about myasthenia gravis.

FeaturedActive 6 days ago

Unusual MG Symptoms?

Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which I still have). I had an almost cancerous...

FeaturedActive today

How do you balance exercise and MG?

We all know exercise is a key part of being/getting healthy, but overexertion is also a key part to triggering MG symptoms. Is there any tips or hacks to balancing...

Active today

anyone tried injectable Vyvgart Hytrulo?

my doctor has prescribed this as a next step in treating my MG. I started with ocular MG and progressed to general body MG with still lingering effects from ocular...

Active today

Leg and Foot Cramping and Pain

Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience leg pain? Describe the sensation, and if you...

Active yesterday

Anyone taking Ultomiris?

I’ve had (2) IVIg treatments and will have one more next week. I will be starting Ultomiris in May and going forward. Can anyone share experiences with this treatment? Whether...

Active yesterday

Deep frustration and sadness after finding the love of my life

Hi all, my name is Lucienne, i,m a 57 year old woman from The Netherlands. I,m so depressed and sad that i decided to search for a forum where i...

Active yesterday

Methotrexate

Is anyone currently taking Methotrexate please? This has now been prescribed for me as I was experiencing bad side effects from taking Mycophenolate. Mainly numbness of hands and feet, but...

Active yesterday

Side effects from medications that your doctor wont acknowledge

Have you ever started a new medication and began having symptoms that your doctor refuses to acknowledge? How did you overcome this? How did it make you feel?...

Active yesterday

Cellcept side effects

Hello, I’m in the UK and over here Cellcept is called Mycofenax. I ve just been put on this drug as I had to come off off Azothioprine as it...

Active yesterday

Vyvgart Side-Effects and Adverse Reactions

We understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it? Did it lead to your doctor ordering you...

Active yesterday

Medication & Treatment Side Effects

Have you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or treatment? How did you approach the conversation with...

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