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Read conversations, start a discussion, and connect with others about myasthenia gravis.

FeaturedActive 3 days ago

Unusual MG Symptoms?

Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which I still have). I had an almost cancerous...

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How do you balance exercise and MG?

We all know exercise is a key part of being/getting healthy, but overexertion is also a key part to triggering MG symptoms. Is there any tips or hacks to balancing...

Active today

Do you have problems swallowing?

Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and https://myasthenia-gravis.com/living/barium-swallow-experience...

FeaturedActive today

Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?

Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered you the most improvement, and what doses? -...

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Eating with MG

I eat in smaller bites than I used to do. Cut up food in smaller pieces and take smaller bites. It helps when I have trouble swallowing, It does not...

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Is hip pain bothering you?

Hip pain can be a concerning symptom for those of us living with Myasthenia gravis. This pain can be attributed to muscle weakness, inactivity, or other underlying conditions that may...

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What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can provide valuable perspectives for other navigating similar journeys....

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MYASTHENIA GRAVIS

Myasthenia gravis...

Active yesterday

Plasmapheresis and IVIG

I was 91 years when I was diagnosed with MG. Since then I have been treated with the usual oral meds including prednisone, mestinon, mycophenolate mofetil and infusions of Soliris...

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IVIG Side Effects

IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...

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Treatment Question

I have had double vision for around 6 months. I have been tested for MG twice with blood work that came back negative both times. My nuero Opthalmologist is very...

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Intervenes or subcutaneous therapy

Has anyone been on Rystiggo?...

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