FeaturedMG testing complicated by pre-existing conditionsHello everybody I just registered here today to ask for advice on testing for MG when there are pre-existing genetic conditions and autoimmune conditions with overlapping symptoms. I will try...Reactions 0 reactions Comments6 replies
Featured New life with MGI’m just starting my journey with MG. I’m scared and concerned. People are beginning to notice that there's something wrong. My eyes are sagging, they drift outwards. I have trouble...Reactions 0 reactions Comments12 repliesAutoimmune DiseasesGeneralized MGOcular MG
Active todayMy storyI am 65 years old. I was diagnosed with Myasthenia Gravis almost 3 years ago. It started 3 years ago with double vision. I didn’t know until 4 months later...Reactions 0 reactions Comments0 repliesDiagnosisMuscle WeaknessThymectomy
Active yesterdayCBD and how it is good or bad for myasthenic patients.With sore muscles I would like to use CBD cream. I am concerned that the weak muscles might not respond well. At the same time would it be a real...Reactions 0 reactions Comments3 repliesMedical MarijuanaMuscle Weakness
Active yesterdayPlasmapheresis cessation My wife was recently diagnosed with MG and had a thymectomy two and a half months ago. My expectation was that she would be on medication to control symptoms from...Reactions 0 reactions Comments4 repliesTreatmentNewly Diagnosed
Active yesterdayWas Gaslighting Involved in Your Diagnosis Journey?Did any health professionals dismiss your symptoms before you finally received the answers that you had an MG diagnosis? Were you ever told you were making up your symptoms or...Reactions 0 reactions Comments0 repliesSymptomsDiagnosisAwareness
Active yesterdayExercise with Myasthenia GravisHave been diagnosed with MG for 11 years. Strongest symptoms showed 2 years ago and hospitalized me. Have engaged in moderate exercise last 2 years - hiking, walking, biking. I...Reactions 0 reactions Comments3 repliesExercise
Active yesterdayUPDATE: Thymectomy surgeryI had my thymectomy surgery Dec 3rd and was released from the hospital the next day. It was a success. Oddly enough I am a lot more mobile than I...Reactions 0 reactions Comments15 repliesThymectomySurgeryTreatment
Active 6 days agoSuspect MyastheniaI had a ct scan on my lungs because of a persistent cough. The scan showed atelectasis in both lungs. The pulmonary doctor said it was caused by muscle weakness...Reactions 0 reactions Comments3 repliesDiagnosis
Seronegative MGGood Morning! I recently was diagnosed with MG. Going next week to have a scan of the Thymus and discussion after with MG Neuro on the next steps. Nervous about...Reactions 0 reactions Comments1 repliesSeronegativeTips & Advice
Newly diagnosed at age 82 Since 1997 I've had symptoms which I think have been myasthenia gravis all along but was misdiagnosed with a psychiatric disorder, bipolar II rapid cycling. Symptoms were physiological only, with...Reactions 0 reactions Comments4 repliesNewly Diagnosed
FeaturedDid you test positive for any MG antibodies?AChR, MuSk, LRP4? Are you seronegative? Don't know or not sure? Share your experiences here...Reactions 0 reactions Comments13 repliesSeronegativeTypesDiagnosis
