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Read conversations, start a discussion, and connect with others about myasthenia gravis.

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Unusual MG Symptoms?

Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which I still have). I had an almost cancerous...

FeaturedActive 5 days ago

How do you balance exercise and MG?

We all know exercise is a key part of being/getting healthy, but overexertion is also a key part to triggering MG symptoms. Is there any tips or hacks to balancing...

Active today

VYVGART?

I started Vivgart infusions on May 5, 2025 and I’m still taking 10 mg Prednisone & 2,000 mg mycophenolate per day. Pyridostigmine is as needed and take about 1 x...

Active today

I have major symptoms, but was told it is not MG.

I recently had an evaluation with a PT and after reviewing my extensive medical record asked if I had MG. I told her that I’ve been tested several times over...

Active today

How Do You Cope With Hot Temperatures?

Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the hot temperatures? When you are outside in the...

Active today

Occular MG

My eye lid started drooping one week ago and my other eye double vision. My blood pressure went very high so the ER first assumption was a stroke did ct...

Active 2 days ago

runny nose

I don't have a cold or sinus or allergies. I'm in year one of MG and my nose will not stop running and sneezing often. Drip drip drip my nose...

Active 2 days ago

Muscle Spasms

I was diagnosed in 1995 I had no mobility at all I take mestinon and Prednisone to stay stable. I notice I have very bad muscle spasms and stay tired...

Active 2 days ago

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come out. I've been using catheters on and off...

Active 3 days ago

What are the early signs of glaucoma, and can a regular optician spot them?

Glaucoma is often called the "silent thief of sight" because it typically develops slowly and without noticeable symptoms in the early stages. Some early signs, when they do appear, may...

Active 3 days ago

Do you have problems swallowing?

Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and https://myasthenia-gravis.com/living/barium-swallow-experience...

Active 4 days ago

Vyvgart Hytrulo journey

I want to start a thread to post my experience with Vyvgart Hytrulo as a treatment for gMG. It is not easy to get an understanding of what is required...

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