FeaturedWill you take our In America survey and help others understand the true impact of MG?To better understand the patient experience and realities of MG, we are fielding our 2nd Myasthenia Gravis In America survey. By taking this anonymous survey, you can help everyone better...Reactions 0 reactions Comments0 replies
FeaturedVyvgartDid anyone get the new Vyvart infusion yet? My dr wants me try to try it but had flair after 13 yrs with no symptoms until Feb of this year...Reactions 0 reactions Comments15 repliesAutoimmune DiseasesTreatment
Active todayPregnant with MGHello everyone, I've been away for quite some time now and that is due to the fact that I found out me and my hubby are expecting our 3rd child...Reactions 0 reactions Comments0 repliesGeneralized MGTips & Advice
Active todayIVIG Side EffectsIVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...Reactions 0 reactions Comments14 repliesMuscle WeaknessSide EffectsTreatment
Active todayTremors, muscle twitchesHello dear forum friends. I’m a newbie here and learning a lot from you all. I am AChR positive, bulbar presentation with lost voice and swallowing issues. Did 5 plasmapheresis...Reactions 0 reactions Comments22 repliesMuscle WeaknessSymptoms
Active todayHow do you get diagnosis when you keep getting turned down from doctors?So I'm new to this whole thing. And this site, to which im entirely grateful for. I am extremely frustrated, and I don't know what to do now, and i...Reactions 0 reactions Comments9 repliesSeronegative
Active 6 days agoAdvocating and making changes in the diagnosis and treatment of Myasthenia Gravis I'm feeling like advocating more for Myasthenia Gravis Awareness and Understanding. Without our contributions to research, community outreach. Educating others and the medical field of what our life is like...Reactions 0 reactions Comments0 repliesAwarenessDiagnosisResearch & Clinical Trials
Active 6 days agoTinnitusI have tinnitus which coincidentally started about the same time my other neurological issues did. Have others had this same problem and if so, has your neurologist said it was...Reactions 0 reactions Comments0 repliesDiagnosisSymptoms
Active 6 days agoWhat Test(s) Were Used to Diagnose Your MG?What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis...Reactions 0 reactions Comments3 repliesDiagnosisNewly DiagnosedSymptoms
Active 6 days agoShaking (tremor) and myastheniaHello! I was diagnosed with myasthenia gravis almost a year ago. I had slurred speech, difficulty swallowing and chewing, and than after some time my hands would get weak. The...Reactions 0 reactions Comments22 repliesMuscle WeaknessSymptoms
Active 6 days agoSorting out MG and non MG symptoms - balance vs. weaknesscontext: my diagnosis is only tentative seronegative - but I have had classic MG-type symptoms for over 20 years with no meds prescribed so far. In an effort to better...Reactions 0 reactions Comments1 repliesMuscle WeaknessSeronegativeTriggers
Active 6 days agoMy PCP says...Although the neuro has yet to diagnose me, he put me on Mestinon and it seems to help (although only 2x per day, AM and bed) but my PCP says...Reactions 0 reactions Comments7 repliesGeneralized MGHealthcare TeamSymptoms
