Active 6 days agoAnyone taking Ultomiris?I’ve had (2) IVIg treatments and will have one more next week. I will be starting Ultomiris in May and going forward. Can anyone share experiences with this treatment? Whether...Reactions0reactionsComments1 repliesTreatment
Active 6 days agoSorting out MG and non MG symptoms - balance vs. weaknesscontext: my diagnosis is only tentative seronegative - but I have had classic MG-type symptoms for over 20 years with no meds prescribed so far. In an effort to better...Reactions0reactionsComments9 repliesMuscle WeaknessSeronegativeTriggers
Active 6 days agoMuscle crampingI haven't been diagnosed with MG but my doctors and I are believe it is likely causing my symptoms, notably double vision and extreme muscle fatigue that varies throughout the...Reactions0reactionsComments115 repliesDiagnosisGeneralized MGSymptoms
FeaturedActive 7 days agoDo You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered you the most improvement, and what doses? -...Reactions0reactionsComments154 repliesSeronegativeTreatmentDiagnosis
FeaturedActive 7 days agoWhich doctor is your primary doctor for your MG?Who do you see for your care around your myasthenia gravis diagnosis?...Reactions0reactionsComments36 repliesHealthcare TeamDiagnosis
Active 7 days agoMuscle and neck painDoes anyone elsr suffer from muscle and neck pain? I feel the weakness in limbs but the pain really bothers me....Reactions0reactionsComments61 replies
Active 8 days agoSlurred speechDoes anyone have slurred speech feeling that your tongue is numb or burning? If so, what was prescribed to help?...Reactions0reactionsComments2 replies
Active 8 days agoAlternative medicationI’m a little curious I was read an article about ivermectin and was wondering if anybody has been using it or use it to control their MG. I am considering...Reactions0reactionsComments0 replies
Experiencing drooling Has anyone experienced drooling after being diagnosed with MG. Over the past three weeks I've noticed that I will drool off and on through out the day. It's very frustrating...Reactions0reactionsComments0 repliesSymptoms
anyone get glasses for your double vision?My opthamologist who diagnosed my MG wants to stay involved in my treatment, he was saying he would do botox on my eye to make the muscle wake up that...Reactions0reactionsComments0 replies