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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active yesterday

Cold weather

Does cold weather impact your myasthenia gravis symptoms? Do things like fatigue, muscle cramping/weakness get worse when the weather is colder? If so, what do you do to manage these...

Active yesterday

Tremors, muscle twitches

Hello dear forum friends. I’m a newbie here and learning a lot from you all. I am AChR positive, bulbar presentation with lost voice and swallowing issues. Did 5 plasmapheresis...

Active 2 days ago

What is the most effective treatment for MG!

Got diagnosed 5 months ago and was started on 1 tablet of Pyridostigmine a day & now taking 4 tablets daily with 20mg of steroids which has given me severe...

Active 2 days ago

What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can provide valuable perspectives for other navigating similar journeys....

Active 4 days ago

US Presidential Election and MG Healthcare

How are you feeling about future healthcare and MG treatment with a new administration coming into office in January?...

Active 6 days ago

Muscle and neck pain

Does anyone elsr suffer from muscle and neck pain? I feel the weakness in limbs but the pain really bothers me....

Active 7 days ago

How Do You Cope With Hot Temperatures?

Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the hot temperatures? When you are outside in the...

Active 8 days ago

Cuvitru vs Vivgard

Hi, I was diagnosed approx. 3 years ago with seronegative Myasthenia Gravis. I am wondering if anyone has experience being on Cuvitru and Vyvgart and pros or cons of each....

Shaking (tremor) and myasthenia

Hello! I was diagnosed with myasthenia gravis almost a year ago. I had slurred speech, difficulty swallowing and chewing, and than after some time my hands would get weak. The...

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How do you balance exercise and MG?

We all know exercise is a key part of being/getting healthy, but overexertion is also a key part to triggering MG symptoms. Is there any tips or hacks to balancing...

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