Active 7 days agoWhat were your immediate changes after your MG diagnosis?As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...Reactions0reactionsComments9 repliesNewly DiagnosedSymptomsCoping
Active 7 days agoWhat Part of Your Legs Do You Have Pain or Cramps Most Often?What part of your legs do you most often experience pain or cramping? Are you currently on Pyridostigmine (Mestinon), or were you when you were experiencing this?...Reactions0reactionsComments1 repliesTreatmentSide EffectsSymptoms
Active 7 days agoWhat Percentage of Your Day Is Impacted by MG?What percentage of your average day is impacted by MG? This could be a time when MG is limiting you or your energy, when your symptoms are acting up, when...Reactions0reactionsComments2 repliesSymptomsWork & EmploymentMuscle Weakness
Active 7 days agoUnderstanding Myasthenia Gravis: Symptoms and DiagnosisMyasthenia gravis (MG) is a chronic autoimmune neuromuscular disorder characterized by varying degrees of skeletal muscle weakness. This condition occurs when the immune system produces antibodies that interfere with the...Reactions0reactionsComments1 repliesSymptoms
Active 7 days agoFirst SymptomsWhat were the first MG symptoms you experienced? How long did they persist before you were diagnosed? How long until you felt you possibly had something serious? - Jodi, Team...Reactions0reactionsComments11 repliesSymptomsDiagnosisAwareness
Active 7 days agoHow Do You Cope With Hot Temperatures?Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the hot temperatures? When you are outside in the...Reactions0reactionsComments48 repliesWeatherCopingSymptoms
Active 7 days agoWas Gaslighting Involved in Your Diagnosis Journey?Did any health professionals dismiss your symptoms before you finally received the answers that you had an MG diagnosis? Were you ever told you were making up your symptoms or...Reactions0reactionsComments95 repliesSymptomsDiagnosisAwareness
Active 7 days agoHow do you manage MG speech problems?Have you ever experienced speech problems with MG? Speech symptoms can include slurred speech, trouble forming words, a monotone voice, and more. Tell us what it's like. How do you...Reactions0reactionsComments19 repliesSymptomsTips & AdviceCoping
Active 7 days agoDoes anyone else have bowel/bladder issues with MG?Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come out. I've been using catheters on and off...Reactions0reactionsComments22 repliesGeneralized MGMuscle WeaknessSymptoms
Active 7 days agoWhat are the early symptoms of Myasthenia Gravis, and how can they be managed effectively?Myasthenia Gravis (MG) often begins with symptoms that may seem mild but can gradually worsen. Early signs include muscle weakness, especially in the eyes, face, and throat, which may cause...Reactions0reactionsComments1 repliesSymptomsCaregivingAwareness