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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active yesterday

How Do You Cope With Hot Temperatures?

Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the hot temperatures? When you are outside in the...

Active 4 days ago

Muscle and neck pain

Does anyone elsr suffer from muscle and neck pain? I feel the weakness in limbs but the pain really bothers me....

Active 5 days ago

How are folks able to tolerate Mestinon (Pyridostigmine)?

The doctor was having me take 60mg 3 times daily. Leg cramps and gut issues ended that. Does anyone have any tricks to try so I can get back on...

Active 5 days ago

Do you have problems swallowing?

Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and https://myasthenia-gravis.com/living/barium-swallow-experience...

FeaturedActive 5 days ago

Which doctor is your primary doctor for your MG?

Who do you see for your care around your myasthenia gravis diagnosis?...

Active 5 days ago

I V ports

I had a port put in yesterday as I am a hard stick. I was wondering what kind of experience people have had with ports?...

Active 6 days ago

CAR T Cell therapy or UCAR T cell therapy

My family member has been diagnosed with MG. It's been refractory to the first 4 infusions. He has the opportunity to enter a CAR T cell study , but really...

Active 6 days ago

Do positive blood tests later show no sign of gMG?

My neurologist keeps saying that now that my antibody blood test shows no antibodies, that she is stopping Vyvgart. This is after 3 positive blood tests that kept getting worse...

Active 6 days ago

Myasthenia-gravis

I have not been diagnosed with OMG but I have read a lot about this condition after suffering from Bell's Palsy, I had double vision and drooping eyelids, loss of...

Active 7 days ago

Change in Symptoms

Hello. I have generalized MG for the past 1 1/2 years. For the past 2 months, I get overheated VERY easily from just getting dressed in the morning to walking...

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