Hey there! I am delighted to welcome you to this fantastic community of supportive individuals. I am truly glad you found us at the beginning of your MG journey. I hope you will benefit greatly and feel comfort from the resources and experiences shared. Unfortunately, it is a significant trend amongst those with MG that doctors and MG specialists do not associate MG with being related to or a cause of pain. However, as you can see from all the responses in these discussions alone, https://myasthenia-gravis.com/forums/muscle-and-neck-pain, https://myasthenia-gravis.com/forums/leg-and-foot-cramping-and-pain, https://myasthenia-gravis.com/forums/gaslighting, pain is a widespread occurrence with those with MG. It is no doubt frustrating having this dismissed by our doctors, but I encourage you to go throughout your MG journey with these tips in mind: https://myasthenia-gravis.com/living/educating-yourself. Doctors who treat MG generally treat a vast majority of conditions and can not possibly stay up to date/ read all patient experiences on all those conditions. We wish they knew everything, but doctors are human, too. Trust in your education and knowledge of MG when communicating with doctors, and remember that even if you two disagree, that does not necessitate that your doctor is no good. Usually, doctors base their knowledge on previous patients they have treated, and more importantly, they stick to where there is scientific research and backed-up findings. MG and the connection to pain are lacking in scientific research, and that is where, I believe, the gap for doctors dismissing pain as MG-related is based. This article may help you feel less alone as well: https://myasthenia-gravis.com/clinical/pain.
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Please reach out if you have any questions or concerns or need a listening ear! We are rooting for you! 😀
Jodi, Team Member

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