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Muscle pain

I was just diagnosed with MG in February and my initial symptoms were difficulty chewing and some fatigue. I have managed fairly well on a dose of 10mg prednisone a day and 60 mg Mestinon 3x daily. I really slacked off of the Mestinon due to the frequent bowel movements it caused. In the course of my job I drive to different customer locations that are as far as 5 hours away. Many of these locations are not near a major interstate highway so no rest stops along the way. Anyway, recently I have been noticing that my legs feel week when walking say as far as from the Walmart parking lot to the back of the store. About a week ago I began experiencing increasing pain in my lower back that would shoot down the back of my thighs. I went to my primary care physician and x-rays don't reveal any spinal issues. I was given some Tramadol to help with the pain along with a muscle relaxer. This morning the pain seems more in my buttocks and thighs and now my calf muscles hurt as well. I normally shower and shave first thing in the morning but the pain makes it an excruciating experience. Standing is the worst thing. I have a physical therapy appointment set up for next week but I suspect this is an MG issue and the therapy probably won't help. I also have Rosacea and had been prescribed Doxycycline for it. I had stopped taking it as it can be found on some lists to avoid for MG patients. I restarted taking it about 3 or 4 weeks ago due to a skin breakout near my left eye. A light bulb went off in my head this morning and I am discontinuing the Doxycycline as I fear it might be the cause of my increased MG symptoms. Does anyone else experience severe muscle pain that they think is related to MG?

  1. using a shower chair/bench and getting handicap parking has really helped me out with leg pain/weakness

    1. Hello I was also experiencing leg cramps, weak arms, hand spasms/cramping and a new symptom I'm experiencing is lower back pain that seems to get worse at night. When I was in the hospital the doctor tried to give me muscle relaxers which proved to me that they weren't familiar with MG because muscle relaxers can worsen symptoms related to MG. DONT TAKE MUSCLE RELAXERS. It's a good that you researched that Doxycycline is on the list for medications not to take. I'm still learning what is and is not recommended for MG patients. A lot of trial and error because we don't know until we notice we feel differently after eating/taking something. You are definitely not alone my friend. Happy road to remission. - Jazmin (MG team member)

      1. Hi others in our community have mentioned living with pain. Many in our community experience pain from muscle aches or cramps. How have you been doing with this lately? Wishing you well. Kindly, Jessica, Team Member

        1. Yes I have the cramps in the legs and thighs worse at night restless legs doesn’t help the cramps right now I’m taking Ripinole for restless legs 2mg and has helped so much with the cramps in legs and thighs etc and with restless legs I’m able to sleep again hope this will help you

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