Muscle cramping
I haven't been diagnosed with MG but my doctors and I are believe it is likely causing my symptoms, notably double vision and extreme muscle fatigue that varies throughout the day. AcHR and MuSK were both negative but I asked for some additional tests before we rule out MG.
My main question revolves around muscle cramping. I'm addition to profound muscle weakness at times, I have intense muscle cramping (mostly in the legs but also sometimes in the arms). It feels like my muscles are trying to contort in an unnatural way and I am unable to relax them. Afterwards they will be so sore and it feels like I did a really intense workout. If I try to use that muscle after it will burn and become numb and weak within minutes.
My muscles ache reflexes are also very sensitive. A gentle touch can cause then to spasm.
Does anyone with MG experience this? Or should I be considering different diseases?
I get them a lot. Some were very painful and lasted up to 30 minutes. I would also get random muscle twitches in strange places (for example a quarter sized area on one of my pecs.). It is pretty common with MG accord to my doctor. He put me on Baclofen which helps reduce the frequency and duration.
Every night and when I lay down in the afternoon.
Yes but my doctors claim it it a Mestinon reaction. Who do you believe?
Excessive standing and not hydrating properly, gives me leg cramps.Immediate relief comes from mustard packets. Once cramps begin. I eat a spoonful or packet of regular yellow mustard. 1-2 minutes, the cramps subside and I can resume normal sitting.
