Muscle cramping
I haven't been diagnosed with MG but my doctors and I are believe it is likely causing my symptoms, notably double vision and extreme muscle fatigue that varies throughout the day. AcHR and MuSK were both negative but I asked for some additional tests before we rule out MG.
My main question revolves around muscle cramping. I'm addition to profound muscle weakness at times, I have intense muscle cramping (mostly in the legs but also sometimes in the arms). It feels like my muscles are trying to contort in an unnatural way and I am unable to relax them. Afterwards they will be so sore and it feels like I did a really intense workout. If I try to use that muscle after it will burn and become numb and weak within minutes.
My muscles ache reflexes are also very sensitive. A gentle touch can cause then to spasm.
Does anyone with MG experience this? Or should I be considering different diseases?
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Hello. I am newly diagnosed MG and have experienced terrible shin splint pain that makes my toes curls. It is so painful I can’t place any pressure on my legs or even move them.
I have tried the massager, ice packs and heat. This has helped subside the pain sometimes and sometimes it doesn’t feel like it helps.
I’m on 60mg Prednisone a day and Pregabalan. I had my first IVIG 5 day treatment this past week. The last two days of treatment the right side of my neck has started to hurt. It goes down into my shoulder blade. Now it bothers me when I go to bed and off and on during the day.
The reason I bring this up is bc I tried Mestinon but it made me feel like I was having a heart attack so I had to stop. I’m wondering if it’s more MG or something else that’s causing these spasms since I’m experiencing similar symptoms as you have all shared but I do not take that medication?
Thanks for everyone’s replies! It is super helpful as I try to navigate something so new and something that is so different for everyone!
Being able to read your posts have been both encouraging and validating!My leg cramps are so dry but less severe after drinking a glass of water both day and night. The leg cramps are so severe they tend to totally restrict my body movement. They normally subside after a good alcohol rub.
