Muscle cramping
I haven't been diagnosed with MG but my doctors and I are believe it is likely causing my symptoms, notably double vision and extreme muscle fatigue that varies throughout the day. AcHR and MuSK were both negative but I asked for some additional tests before we rule out MG.
My main question revolves around muscle cramping. I'm addition to profound muscle weakness at times, I have intense muscle cramping (mostly in the legs but also sometimes in the arms). It feels like my muscles are trying to contort in an unnatural way and I am unable to relax them. Afterwards they will be so sore and it feels like I did a really intense workout. If I try to use that muscle after it will burn and become numb and weak within minutes.
My muscles ache reflexes are also very sensitive. A gentle touch can cause then to spasm.
Does anyone with MG experience this? Or should I be considering different diseases?
Yes, I have the same problem. If I over extend my energy the cramping is more frequent. If, I’m not keeping my potassium up, it worsens in frequency and intensity. So, I keep potassium in my diet to prevent as I’m on steroids. If I keep the potassium good then the cramping stays in my hands, forearms, toes and feet. If my potassium is a little low, then my calf cramps (yet it feels different from a typical Charlie’s horse cramp). My left calf is still sore from days ago. I’ve been stretching daily to continue working it back to normal. Managing MG is such a balance. So thankful I was a nurse for years and an FNP-C. The knowledge has been helpful, although MG friends are the best!!!!
I was diagnosed with MG About 10 months ago. My doctor's felt In looking back at my records that I have probably had it for close to 20 years! I was home alone and almost choked to death on a bite of food and when my partner came home we went to the ER and fortunately there was a very observant doctor there and they ran the tests and I was very positive. The one test they said the threshold was 0.05 And I was at 23.
I was experiencing all sorts of leg and body cramps and I found that hydration and watching my electrolytes and most importantly I invested in the hot tub! When the cramps get bad I head to the hot tub after some TJ Clark minerals and 12-16oz of water. It seems the warmth and buoyancy relieve my cramps. Many a day by 05:00 you will find me there...Just last night I was up at 3,4,5am with such crippling cramps in my calf’s and feet that made them contort to unnaturally positions. I found myself in tears and having to walk the halls just to get some relief. I called my neurologist today and they said it could be from Mestinon. I am going to take smaller doses and more of them to see if this helps.
I used to but now if I drink some electrolytes every day they are very rare.
I’ll have to try that. I think I have some somewhere. Thanks for the tip!
