Active 4 days agoWeekly episodes of sounding and looking drunk. GP suggests menopause, but could it something more?I am writing this post on behalf of my mum and it's going to be a lengthy one. She is 52, no pre-existing health conditions established, although she did have...Reactions 0 reactions Comments3 repliesSymptoms
Diagnosis - New Symptoms?Hello, I am so thankful for this forum. Your replies have been a tremendous help. I went to my neurology appointment today, and he immediately referred me to a bigger...Reactions 0 reactions Comments5 repliesDiagnosisSymptoms
What Test(s) Were Used to Diagnose Your MG?What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis...Reactions 0 reactions Comments20 repliesDiagnosisNewly DiagnosedSymptoms
Tremors, muscle twitchesHello dear forum friends. I’m a newbie here and learning a lot from you all. I am AChR positive, bulbar presentation with lost voice and swallowing issues. Did 5 plasmapheresis...Reactions 0 reactions Comments23 repliesMuscle WeaknessSymptoms
Highest Steroid Dose You’ve Been PrescribedWhat is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...Reactions 0 reactions Comments12 repliesCrisisSymptomsTreatment
MYOCLONUS Nightly and now at times during afternoon nap. When extremely short of breath, my ribs feel as if squeezing and aching pain in the past. Now only mild activity brings...Reactions 0 reactions Comments21 repliesGeneralized MGSleepSymptoms
Was Gaslighting Involved in Your Diagnosis Journey?Did any health professionals dismiss your symptoms before you finally received the answers that you had an MG diagnosis? Were you ever told you were making up your symptoms or...Reactions 0 reactions Comments41 repliesAwarenessDiagnosisSymptoms
TinnitusI have tinnitus which coincidentally started about the same time my other neurological issues did. Have others had this same problem and if so, has your neurologist said it was...Reactions 0 reactions Comments7 repliesDiagnosisSymptoms
Pain when swallowing.I know that a lot of us have difficulty swallowing. When I am overtired or it’s time for medication I can have difficulty swallowing with pain, sometimes a good bit...Reactions 0 reactions Comments6 repliesSymptoms
My PCP says...Although the neuro has yet to diagnose me, he put me on Mestinon and it seems to help (although only 2x per day, AM and bed) but my PCP says...Reactions 0 reactions Comments12 repliesGeneralized MGHealthcare TeamSymptoms
