Toll Prednisone Took on Your BodyWhat impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...Reactions0reactionsComments89 repliesSide EffectsTreatmentNewly Diagnosed
Unexplained Symptoms that are Not Characteristic MG Symptoms?What unexplained symptoms do you have that are not characteristic MG symptoms?...Reactions0reactionsComments4 repliesSymptomsNewly DiagnosedAwareness
A little denial Hi, I was diagnosed in January 2025. I have been on Mestinon 60 mg 3 X a day. At the end of November, I started having increased blurred vision and...Reactions0reactionsComments0 repliesNewly Diagnosed
Have you heard about these latest FDA-approved MG treatments?Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...Reactions0reactionsComments4 repliesNewly DiagnosedTreatmentAwareness
Ocular myasthenia gravis I was diagnosed with OMG today. My right eye is pretty much closed be the end of the day. I had an EMG on my face to diagnose it and...Reactions0reactionsComments24 repliesDepressionOcular MGNewly Diagnosed
3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in time and have given yourself? Mine would be:...Reactions0reactionsComments28 repliesTips & AdviceTreatmentNewly Diagnosed
Have you experienced losing your voice?Have you or anyone you know with MG ever experienced losing their voice, also known as aphonia? I'm curious to hear about your experiences. Any stories would be appreciated!...Reactions0reactionsComments4 repliesSymptomsNewly DiagnosedCoping
Are You Religious or Spiritual?Do you identify with or employ religion or spirituality in your life? Were you this way before your Myasthenia gravis diagnosis? How have these practices, thoughts, and connections to something/someone/higher...Reactions0reactionsComments20 repliesMental HealthCopingNewly Diagnosed
Myasthenia Gravis and Cardiovascular MedicationMyasthenia gravis may pose a risk to patients using cardiovascular medications to treat heart conditions (coronary artery disease, hypertension, high cholesterol, and heart arrhythmias). Beta-blockers, calcium channel blockers, and statins...Reactions0reactionsComments18 repliesTreatmentSymptomsNewly Diagnosed
Myasthenia Gravis post COVID Vaccination Hello All, I want to share my story and wants to check if you have similar experience. And, wants to understand what's coming-up in the future. I have taken first...Reactions0reactionsComments18 repliesGeneralized MGNewly Diagnosed