Active 4 days agoToll Prednisone Took on Your BodyWhat impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...Reactions 0 reactions Comments47 repliesNewly DiagnosedSide EffectsTreatment
Had You Heard of Myasthenia Gravis Before Your Diagnosis?When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from where? I was utterly clueless about what it...Reactions 0 reactions Comments36 repliesAwarenessDiagnosisNewly Diagnosed
Did You Massage Your Thymectomy Scar?Many hospitals and health institutions recommend scar massaging a few weeks post-operation. Different massaging methods may be suggested, but they all have the same purpose. The aim of scar massaging...Reactions 0 reactions Comments8 repliesNewly DiagnosedSurgeryThymectomy
Severity of symptomsMy husband was experiencing muscle weakness in his legs for several years - needing to frequently "rest" between activities. We talked to several doctors with no real suggestions. Last year...Reactions 0 reactions Comments2 repliesNewly DiagnosedSymptomsDiagnosis
How does the heat affect you?Yesterday I took a walk, the distance I've been able to work up to since starting Mestinon a few weeks ago. Nowhere near how far I could walk a year...Reactions 0 reactions Comments4 repliesExerciseNewly DiagnosedWeather
What were your immediate changes after your MG diagnosis?As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...Reactions 0 reactions Comments0 repliesCopingNewly DiagnosedSymptoms
3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in time and have given yourself? Mine would be:...Reactions 0 reactions Comments6 repliesNewly DiagnosedTips & AdviceTreatment
Gabapentin and Myasthenia GravisGabapentin (Gralise, Horizant, Neuraptine) is deemed cautionary with Myasthenia gravis, as it can potentially worsen symptoms. Gabapentin is used to treat seizure, nerve, and pain conditions. It can be problematic...Reactions 0 reactions Comments27 repliesNewly DiagnosedTreatmentTriggers
How Long Have / Did You Experience Discomfort After Thymectomy?It has been almost 2 years since my transsternal thymectomy. I had a good amount of pain afterward, toward my stomach, sides, and back. At my follow-up appointments, my scans...Reactions 0 reactions Comments2 repliesNewly DiagnosedThymectomyTreatment
Myasthenia Gravis and Cardiovascular MedicationMyasthenia gravis may pose a risk to patients using cardiovascular medications to treat heart conditions (coronary artery disease, hypertension, high cholesterol, and heart arrhythmias). Beta-blockers, calcium channel blockers, and statins...Reactions 0 reactions Comments3 repliesNewly DiagnosedSymptomsTreatment
