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Read conversations, start a discussion, and connect with others about myasthenia gravis.

How long before you were diagnosed?

Hello, I am newly diagnosed and new to this forum. I started having double vision & a droopy eyelid in mid February and was diagnosed with MG 2-3 weeks later...

IVIG Infusion

Hi, I am new to MG and this Forum. First forum I ever joined. I have read many on-line of various subjects when I am looking for info. I am...

3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?

Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in time and have given yourself? Mine would be:...

Do You Have a Caregiver?

Do you have a caregiver? Is your caregiver someone you hired or a loved one? What has been your experience? Any advice for someone looking for or considering the assistance...

Newly Diagnoses

I have had pain in legs and feet prior to being newly diagnosed with MG. I have been seeing a neurologist for 15 years after my familyn physician thought I...

Diagnosis

Hello everyone, I live in Toronto, Ontario (Canada) and have been struggling with my health for years now. In most cases I wait several months to a year + to...

Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...

Unexplained Symptoms that are Not Characteristic MG Symptoms?

What unexplained symptoms do you have that are not characteristic MG symptoms?...

A little denial

Hi, I was diagnosed in January 2025. I have been on Mestinon 60 mg 3 X a day. At the end of November, I started having increased blurred vision and...

Have you heard about these latest FDA-approved MG treatments?

Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...

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