Active 4 days agopossibly diagnosed with MuSK MG and confused/scaredI am a 34 year old woman in New York and for the last 7 months, been having strange symptoms on and off. It started with my arms/legs tingling and...Reactions 0 reactions Comments10 repliesMuscle WeaknessNewly Diagnosed
Therapies to relieve symptomsHey everyone, I'm looking for some therapies that might help relieve some of my symptoms. For a bit of background... I'm 26 and recently diagnosed with Myasthenia Gravis, whilst my...Reactions 0 reactions Comments5 repliesCopingGeneralized MGNewly Diagnosed
What Test(s) Were Used to Diagnose Your MG?What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis...Reactions 0 reactions Comments20 repliesDiagnosisNewly DiagnosedSymptoms
Been ghosted by my neuro's PAEarly this year, just before I got my monthly shot in the eye, I mentioned to my retina specialist that my left eye would suddenly go droopy and I would...Reactions 0 reactions Comments5 repliesHealthcare TeamNewly DiagnosedTreatment
Swings of emotions following diagnosis I'm pretty new here, I'm experiencing huge swings of emotions following diagnosis. From extreme relief and happy that I have an answer to real anger and crying over being ignored...Reactions 0 reactions Comments4 repliesCopingNewly DiagnosedTips & Advice
Myasthenia Gravis post COVID Vaccination Hello All, I want to share my story and wants to check if you have similar experience. And, wants to understand what's coming-up in the future. I have taken first...Reactions 0 reactions Comments6 repliesGeneralized MGNewly Diagnosed
Advice about antibiotics I was diagnosed with MG in Feb '22, as a result of double vision and droopy eyelids. Luckily only misdiagnosed briefly as 3rd cranial nerve palsy before getting corrected diagnosis...Reactions 0 reactions Comments2 repliesNewly Diagnosed
What would you tell yourself when you were first diagnosed?Its easy to notice where we are in the present and where we'd like to be in the future, but what would you tell yourself back when you were told...Reactions 0 reactions Comments9 repliesMental HealthNewly DiagnosedTips & Advice
Your Azathioprine (Imuran) Side Effect ExperienceAzathioprine, also known as Imuran, can cause several side effects, commonly including nausea and vomiting. Long-term usage can cause cancer and infection risk increases. Has your Myasthenia gravis ever been...Reactions 0 reactions Comments2 repliesNewly DiagnosedSide EffectsTreatment
Toll Prednisone Took on Your BodyWhat impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...Reactions 0 reactions Comments25 repliesNewly DiagnosedSide EffectsTreatment
