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Read conversations, start a discussion, and connect with others about myasthenia gravis.

3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?

Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in time and have given yourself? Mine would be:...

Swallowing-Lungs-kidneys with Myasthenia Gravis

I have lung failure with my Myasthenia Gravis. I use to be incubated due to the failure. When nonvolatile acids that are usually moved by the lungs, and must be...

How do you prepare for travel?

Now that it's summer time, it's also vacation time for a lot of people. I myself just cam back from a mini trip. So I was just wondering for everyone...

Mold Toxicity/Exposure and MG

Are you dealing with MG and suspect you’ve been exposed to mold, or have you had confirmed mold exposure in the past? Mold exposure or toxicity can lead to a...

Grocery Shopping Difficulties with MG

Grocery shopping with Myasthenia gravis (MG) necessitates the energy to get up and drive to the store. Even if you plan to use a store mobility scooter, it can still...

Cold weather

Does cold weather impact your myasthenia gravis symptoms? Do things like fatigue, muscle cramping/weakness get worse when the weather is colder? If so, what do you do to manage these...

Knee Pain

Do you experience knee pain or discomfort? Knee pain, while not one of the most commonly reported symptoms of myasthenia gravis (MG), can occur due to the condition's impact on...

What’s something you wish your doctor knew about living with MG?

It’s often difficult to express our challenges in the short appointments that we have to meet with a medical professionals. What are the top three things that you wish your...

traveling with MG

I was diagnosed in July 2024 with ocular mg. I had double vision symptoms. Since I started on mestinon it has controlled the double vision. Now my only symptoms are...

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How do you balance exercise and MG?

We all know exercise is a key part of being/getting healthy, but overexertion is also a key part to triggering MG symptoms. Is there any tips or hacks to balancing...

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