Active todayMyasthenia Gravis for 15 years and has Fallen; now has Brain Bleeds.Hello, I'm new here and I'm researching for my Father in law who has had MG for over 15 years. About a month ago he passed out walking up the...Reactions 0 reactions Comments1 repliesInsurance & DisabilityCrisisMuscle Weakness
Active yesterdayMG Crisis-What Triggered Yours?Have you had an MG crisis (https://myasthenia-gravis.com/crisis)? If yes, do you have an idea of what triggered it?...Reactions 0 reactions Comments22 repliesCrisisTriggersSymptoms
Does Anything Specific Provoke Breathing Difficulty for You?Do you experience problems with your breathing? Does anything specific trigger it? How often does it occur on average?...Reactions 0 reactions Comments1 repliesTriggersSymptomsCrisis
PLEX or IVIG Complications?Have you had complications or issues arise during or after a PLEX (plasma exchange/plasmapheresis) or IVIG (intravenous immunoglobulin injection) treatment? https://myasthenia-gravis.com/treatment...Reactions 0 reactions Comments3 repliesTreatmentCrisisTips & Advice
Emergency room- advocating for your MG and communicating with staffHave you had an emergency room visit since having MG? If you were unaware, many drugs can trigger or worsen MG symptoms and potentially lead to a crisis. Suppose you...Reactions 0 reactions Comments6 repliesAwarenessCrisisHealthcare Team
Neuromuscular Blocking Medication Triggered MG SymptomsNeuromuscular blocking drugs are administered to patients during surgery as muscle relaxants to prevent muscle movement. These medications are scientifically recommended against use in myasthenia gravis patients and, if necessary...Reactions 0 reactions Comments0 repliesSurgeryTriggersCrisis
Pyridostigmine (Mestinon) Shortage in UKYou may be among the many frantic over the pyridostigmine (mestinon) shortage in the United Kingdom. --- How has this affected you? Has your doctor adjust your treatment to accommodate?...Reactions 0 reactions Comments1 repliesTriggersTreatmentCrisis
Highest Steroid Dose You’ve Been PrescribedWhat is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...Reactions 0 reactions Comments19 repliesTreatmentCrisisSymptoms
Did Your MG First Symptoms Happen All at Once, a Crisis?A Myasthenic Crisis is the most severe event Myasthenia gravis can cause. Although it can vary, a crisis typically involves weakening multiple muscles, double vision, unsteady balance, and swallowing difficulties...Reactions 0 reactions Comments0 repliesNewly DiagnosedCrisisAwareness
Surgery caused an MG crisis and Death (Throat stopped working)My mom (74 yrs. old) recently passed away after being approved for a surgery to fix her broken arm. The anesthesia and surgery created enough stress that triggered a crisis...Reactions 0 reactions Comments3 repliesSurgeryCrisisTriggers