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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Swallowing-Lungs-kidneys with Myasthenia Gravis

I have lung failure with my Myasthenia Gravis. I use to be incubated due to the failure. When nonvolatile acids that are usually moved by the lungs, and must be...

MG Crisis-What Triggered Yours?

Have you had an MG crisis (https://myasthenia-gravis.com/crisis)? If yes, do you have an idea of what triggered it?...

How Do You Use Mindfulness to Navigate Myasthenia Gravis?

Mindfulness has helped me approach life with MG with more patience, self-compassion, and resilience. From practicing acceptance to finding gratitude in the small moments, these principles have truly changed how...

Emergency room- advocating for your MG and communicating with staff

Have you had an emergency room visit since having MG? If you were unaware, many drugs can trigger or worsen MG symptoms and potentially lead to a crisis. Suppose you...

Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet?

Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? --- Did this oversight result in a significant crisis or adverse reaction? --- What steps...

Myasthenia Gravis for 15 years and has Fallen; now has Brain Bleeds.

Hello, I'm new here and I'm researching for my Father in law who has had MG for over 15 years. About a month ago he passed out walking up the...

Does Anything Specific Provoke Breathing Difficulty for You?

Do you experience problems with your breathing? Does anything specific trigger it? How often does it occur on average?...

PLEX or IVIG Complications?

Have you had complications or issues arise during or after a PLEX (plasma exchange/plasmapheresis) or IVIG (intravenous immunoglobulin injection) treatment? https://myasthenia-gravis.com/treatment...

Neuromuscular Blocking Medication Triggered MG Symptoms

Neuromuscular blocking drugs are administered to patients during surgery as muscle relaxants to prevent muscle movement. These medications are scientifically recommended against use in myasthenia gravis patients and, if necessary...

Pyridostigmine (Mestinon) Shortage in UK

You may be among the many frantic over the pyridostigmine (mestinon) shortage in the United Kingdom. --- How has this affected you? Has your doctor adjust your treatment to accommodate?...

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