Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Emergency room- advocating for your MG and communicating with staff

Have you had an emergency room visit since having MG? If you were unaware, many drugs can trigger or worsen MG symptoms and potentially lead to a crisis. Suppose you...

Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet?

Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? --- Did this oversight result in a significant crisis or adverse reaction? --- What steps...

MG Crisis-What Triggered Yours?

Have you had an MG crisis (https://myasthenia-gravis.com/crisis)? If yes, do you have an idea of what triggered it?...

Myasthenia Gravis for 15 years and has Fallen; now has Brain Bleeds.

Hello, I'm new here and I'm researching for my Father in law who has had MG for over 15 years. About a month ago he passed out walking up the...

Does Anything Specific Provoke Breathing Difficulty for You?

Do you experience problems with your breathing? Does anything specific trigger it? How often does it occur on average?...

PLEX or IVIG Complications?

Have you had complications or issues arise during or after a PLEX (plasma exchange/plasmapheresis) or IVIG (intravenous immunoglobulin injection) treatment? https://myasthenia-gravis.com/treatment...

Neuromuscular Blocking Medication Triggered MG Symptoms

Neuromuscular blocking drugs are administered to patients during surgery as muscle relaxants to prevent muscle movement. These medications are scientifically recommended against use in myasthenia gravis patients and, if necessary...

Pyridostigmine (Mestinon) Shortage in UK

You may be among the many frantic over the pyridostigmine (mestinon) shortage in the United Kingdom. --- How has this affected you? Has your doctor adjust your treatment to accommodate?...

Highest Steroid Dose You’ve Been Prescribed

What is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...

Did Your MG First Symptoms Happen All at Once, a Crisis?

A Myasthenic Crisis is the most severe event Myasthenia gravis can cause. Although it can vary, a crisis typically involves weakening multiple muscles, double vision, unsteady balance, and swallowing difficulties...

Categories

Select a category to find topics that interest you.