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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active today

New member, I suspect MG - please confirm which bloodtest I need?

Dear all I am a new member here. I have had MG symptoms for well over 14 years now but its never...

Active today

Seronegative all symptoms/all negative BE and EMG/RNS

Hi everyone, I am new here and also new to myasthenia gravis. I have all negative bloodwork and a negative EMG/RNS. The...

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Driving

When do you realize you are a driving hazard because of double vision and exhaustion? I think I need too consider giving...

Active today

Remission

Has anybody ever heard of a complete remission with all medication being stopped (even Mestinon) and neuroligist confirming that no trace of...

Active yesterday

In remission

I was diagnosed with in early 2020 and had a successful thymectomy in 2021. I was initially given prednisone but had severe...

Active yesterday

In remission from GMG by fixing diet

Developed GMG symptoms - double vision, drooping eyelid, loss of strength / endurance, etc. - in late 2003 when I was in...

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Were you in remission to then have your MG symptoms return?

Have you been treated for Myasthenia gravis and entered a period of remission, but unfortunately, months or years later, your symptoms returned?...

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Leg and Foot Cramping and Pain

Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience...

Active 2 days ago

What came after mestinon & steroids for you?

Did you move from pyridostigmine (60mg) and Prednisone (30mg or so) right to IVIG as your next treatment? Or if not, what...

Active 2 days ago

Problems

I am nearly eighty and have a secondary illness I have to take medication for this 2nd illness which causes constipation etc...

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