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Read conversations, start a discussion, and connect with others about myasthenia gravis.

ivig infusion and back surgery

I start IVIG Infusion on Monday 14, 2025. Five straight days then followed by "maintenance days" of IVIG. During the "maintenance days" , has anyone had back surgery ? How...

Thymectomy via partial sternotomy

Hi there, I’m 20 and I’ve been diagnosed with MG for almost two years now and recently had a thymectomy via a partial sternotomy. I am day 6 post-op and...

Surgery Yesterday

Hello, Just thought I'd share I had my thymectomy yesterday. Up walking pretty quick should be discharged tomorrow all things been well. Feel pretty drugged up. I am going to...

Negative Hospital Experience With MG?

Have you had a negative hospital experience with Myasthenia gravis? Did the staff not have familiarity or knowledge with treating a patient with MG? How did you get through the...

Thymectomy

Hello, I know there's previously been discussions about this from various people in various forms but couldn't find anything for this year or more recent. I'm having my appointment with...

Neuromuscular Blocking Medication Triggered MG Symptoms

Neuromuscular blocking drugs are administered to patients during surgery as muscle relaxants to prevent muscle movement. These medications are scientifically recommended against use in myasthenia gravis patients and, if necessary...

MG Flare

Could an MG Flare be caused by surgery of knee replacement two months prior to the Flare?...

Did You Massage Your Thymectomy Scar?

Many hospitals and health institutions recommend scar massaging a few weeks post-operation. Different massaging methods may be suggested, but they all have the same purpose. The aim of scar massaging...

mg and eye surgery

I am scheduled for a vitrectomy eye surgery for a macular hole ,I am very nervous and am wondering if anyone else has ever had this done that I can...

Managing expectations

Hey folks - I'm pretty new to this, having been diagnosed with antibody positive MG in January. Currently, I am only experiencing ptosis and very occasional diplopia, both of which...

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