Negative Hospital Experience With MG?

Many ER visits still keep me awake at night to this day. I’m a RN myself, however never mention. I have had an attending attempt to do a baker act on me when my neuro was on vacation. I’ve been made fun of, refused O2, refused help eating, bathing and getting to the bathroom. I’ve been told so many times if you would calm down none of this would be happening as my chest was getting to weak to get a full breath. I’ve had to wait over 24 hours to get my first dose of mestinon. I’ve been told you can leave if you would like, we’ll print the AMA paperwork and hold the door open for you. I didn’t have the strength to even speak up, nor could I walk. I’ve collapsed in the street walking out of an ER I was afraid I would die in if I stayed. That was the night my first seizure happened. A passerby called 911 and took me to another hospital and Ivig was started asap and I was hospitalized 5 days. Many times I don’t go to the hospital when I’ve needed to because I’m to weak to talk and definitely to weak to argue about why I need O2 when I’m sating 94-95. They don’t care that I’m on 02 at home. Many nights I’ve been afraid I won’t wake up, but would rather die in peace than the nonsense of proving I need treatment. I even carry all my paperwork. If I’m not at my neuro affiliated hospital, treatment is always delayed with the exception of 1 ER in TN, while commuting home to FL