Active todayHas an MG Treatment Caused You Increased Heart Rate?Has a Myasthenia gravis treatment you have tried caused you an increased heart rate? If so, which one(s)?...Reactions0reactionsComments2 repliesTreatmentSide EffectsAwareness
Active 5 days agoWill you take our In America survey and help others understand the true impact of MG?**The In America survey is now closed** To better understand the patient experience and realities of MG, we are fielding our Myasthenia Gravis In America survey. By taking this anonymous...Reactions0reactionsComments1 repliesAwareness
Headaches or migraines as a primary or persistent/main symptomHi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is under researched like a lot of conditions and...Reactions0reactionsComments8 repliesResearch & Clinical TrialsAwarenessSymptoms
Was Gaslighting Involved in Your Diagnosis Journey?Did any health professionals dismiss your symptoms before you finally received the answers that you had an MG diagnosis? Were you ever told you were making up your symptoms or...Reactions0reactionsComments95 repliesSymptomsDiagnosisAwareness
Had You Heard of Myasthenia Gravis Before Your Diagnosis?When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from where? I was utterly clueless about what it...Reactions0reactionsComments50 repliesDiagnosisNewly DiagnosedAwareness
Nightly cramps after fluoroquinolone antibioticsI was having debilitating pain from cramps in the middle of the night. They continued no matter what I did. Although I was never actually diagnosed with anything, I did...Reactions0reactionsComments0 repliesAwareness
First SymptomsWhat were the first MG symptoms you experienced? How long did they persist before you were diagnosed? How long until you felt you possibly had something serious? - Jodi, Team...Reactions0reactionsComments11 repliesSymptomsDiagnosisAwareness
Have you heard about these latest FDA-approved MG treatments?Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...Reactions0reactionsComments0 repliesNewly DiagnosedTreatmentAwareness
Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? --- Did this oversight result in a significant crisis or adverse reaction? --- What steps...Reactions0reactionsComments0 repliesAwarenessCrisisNewly Diagnosed
MG Awareness Month Forum!What do you wish more people understood about Myasthenia Gravis? Whether it's about symptoms, treatment, daily challenges, or common misconceptions, share your thoughts below....Reactions0reactionsComments75 repliesAwareness