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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 8 days ago

Emergency room- advocating for your MG and communicating with staff

Have you had an emergency room visit since having MG? If you were unaware, many drugs can trigger or worsen MG symptoms and potentially lead to a crisis. Suppose you...

What are the early symptoms of Myasthenia Gravis, and how can they be managed effectively?

Myasthenia Gravis (MG) often begins with symptoms that may seem mild but can gradually worsen. Early signs include muscle weakness, especially in the eyes, face, and throat, which may cause...

Has an MG Treatment Caused You Increased Heart Rate?

Has a Myasthenia gravis treatment you have tried caused you an increased heart rate? If so, which one(s)?...

Will you take our In America survey and help others understand the true impact of MG?

**The In America survey is now closed** To better understand the patient experience and realities of MG, we are fielding our Myasthenia Gravis In America survey. By taking this anonymous...

Headaches or migraines as a primary or persistent/main symptom

Hi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is under researched like a lot of conditions and...

Was Gaslighting Involved in Your Diagnosis Journey?

Did any health professionals dismiss your symptoms before you finally received the answers that you had an MG diagnosis? Were you ever told you were making up your symptoms or...

Had You Heard of Myasthenia Gravis Before Your Diagnosis?

When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from where? I was utterly clueless about what it...

Nightly cramps after fluoroquinolone antibiotics

I was having debilitating pain from cramps in the middle of the night. They continued no matter what I did. Although I was never actually diagnosed with anything, I did...

First Symptoms

What were the first MG symptoms you experienced? How long did they persist before you were diagnosed? How long until you felt you possibly had something serious? - Jodi, Team...

Have you heard about these latest FDA-approved MG treatments?

Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...

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