Active todayHow Often Do You Receive IVIG infusions?Do you receive IVIG (intravenous immunoglobulin) infusions? If so, how often? https://myasthenia-gravis.com/living/ivig-outcome...Reactions 0 reactions Comments1 repliesTreatmentSeronegativeAwareness
Active todayDo You Know Anyone Besides Yourself Who Has Myasthenia Gravis?Do you know anyone besides yourself (or the person you are here to support) who also has Myasthenia gravis? Do you think MG is more common than statistics say? Possibly...Reactions 0 reactions Comments1 repliesFriends & FamilyAwarenessNewly Diagnosed
Active 7 days agoPersonal Experiences with Mental Health Medications: Navigating the Journey to WellnessFor many individuals managing mental health conditions, medication can be a vital component of their treatment plan. However, the decision to start taking psychiatric medications is often accompanied by questions...Reactions 0 reactions Comments1 repliesAwarenessDepressionMental Health
Headaches or migraines as a primary or persistent/main symptomHi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is under researched like a lot of conditions and...Reactions 0 reactions Comments3 repliesResearch & Clinical TrialsAwarenessSymptoms
Has an MG Treatment Caused You Increased Heart Rate?Has a Myasthenia gravis treatment you have tried caused you an increased heart rate? If so, which one(s)?...Reactions 0 reactions Comments1 repliesTreatmentSide EffectsAwareness
MG in the UKJust reaching out to those in the UK as the MG support in the UK is pretty limited I find and this seems like the best place for support, which...Reactions 0 reactions Comments2 repliesFriends & FamilyAwarenessCaregiving
Have You Attended an In-Person Myasthenia Gravis Event or Conference?Have you attended an in-person Myasthenia gravis event or conference? If not, do you have an interest in it?...Reactions 0 reactions Comments0 repliesAwarenessNewly DiagnosedCoping
Pyridostigmine/Mestinon Adverse ReactionsDid you try Pyridostigmine/Mestinon and have adverse reactions causing you to stop taking it? If you are comfortable with sharing, which specific side effects?...Reactions 0 reactions Comments4 repliesTreatmentSide EffectsAwareness
My self healing journeyI was diagnosed as ocular MG in 2006, double vision was the only symptom. I got treatment of prednisone , starting from 60 mg, taping down to low doze after...Reactions 0 reactions Comments5 repliesAwarenessFriends & FamilyOcular MG
Was Gaslighting Involved in Your Diagnosis Journey?Did any health professionals dismiss your symptoms before you finally received the answers that you had an MG diagnosis? Were you ever told you were making up your symptoms or...Reactions 0 reactions Comments94 repliesSymptomsDiagnosisAwareness