Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

My self healing journey

I was diagnosed as ocular MG in 2006, double vision was the only symptom. I got treatment of prednisone , starting from 60 mg, taping down to low doze after...

How Do You Use Mindfulness to Navigate Myasthenia Gravis?

Mindfulness has helped me approach life with MG with more patience, self-compassion, and resilience. From practicing acceptance to finding gratitude in the small moments, these principles have truly changed how...

On a scale of 1-10, how much were you able to participate in holiday activities this year?

On a scale of 1-10, how much were you able to participate in holiday activities this year?...

How can friends and family best support someone with MG?

How can loved ones support and comfort you? What strategies and tips do you have for communicating your needs with family and friends? For any caregivers, what are some ways...

How did you navigate your first big holiday after your diagnosis?

As the holiday season is finishing up, I remembered when I was diagnosed it was 2020 so, like most people, we didn't do our big family get-togethers, like we'd normally...

Myasthenia gravis while in a relationship vs. single

Have you had Myasthenia gravis while in a relationship and single? What are the most significant regular daily changes you noticed? Are certain aspects of MG easier alone? Such as...

Do You Know Anyone Besides Yourself Who Has Myasthenia Gravis?

Do you know anyone besides yourself (or the person you are here to support) who also has Myasthenia gravis? Do you think MG is more common than statistics say? Possibly...

MG in the UK

Just reaching out to those in the UK as the MG support in the UK is pretty limited I find and this seems like the best place for support, which...

Does anyone else in your immediate family have MG?

After a five-year struggle, I was finally diagnosed in 2018 as Seronagative. My journey through a long list of unexplained symptoms help me spot the same issues in my father...

One word to describe the past month

Describe how you have felt this past month with one word....

Categories

Select a category to find topics that interest you.