How did you navigate your first big holiday after your diagnosis?
As the holiday season is finishing up, I remembered when I was diagnosed it was 2020 so, like most people, we didn't do our big family get-togethers, like we'd normally have. Therefore, I didn't have to make a big announcement nor did any adjustments have to be made for me at that time. So I was wondering how others may have felt during that first big family get-together. Did you feel awkward? Did you want to make an announcement? Did you have to change anything that you normally would or would not do?
I'm 79 worked al life grate health in 2022 I started getting tired and then took covid shots stayed in bed 3 days. Since. I cant stay up anymore than 4 hours then sleep 15 hours doctors think I'm faking one told me when I got sick come back. Now after 3 hours can't hardly walk
I’m really sorry to hear what you’re going through. It sounds incredibly challenging to deal with such extreme fatigue and the struggle to be believed by your doctors. Your feelings are valid, and it’s essential to find a healthcare professional who truly listens to and understands your symptoms. Have you received an official MG diagnosis?
Jodi, Team Member
I am 79, so holidays are much different than they used to be. I live in KY and go to TN to my youngest daughter's home for Christmas. They have a tradition that only their immediate family is there first thing Christmas morning. My daughter asked me to spend the night with her in-laws and come over later in the morning. They are great people and I get along well with them, but MG has brought erratic sleeping patterns and having to eat something before I take my medicine. I did not feel comfortable possibly disturbing them. I opted to just drive down Christmas morning instead of going Christmas Eve day. It was just one of many changes, but I am blessed to.be doing well.
