How do you cope with fatigue?
Studies show that fatigue can have major effects in people with autoimmune diseases like MG.
Go to bed and rest or sleep
Feel lucky did not come down with MG before age 72. The dry eye I have is getting worse and worse, can't stand myself mostly because of the constant problems with that. I do have fatigue, my neck bothers so do exercises with my neck, ride my exercise bike, walk a little, but can't hardly use my wood shop because the dry eye drives me crazy. Also need to work on the house which has become impossible. Thought to have a active retirement, but this just sucks. Been giving stuff away, find I just don't need as much as I used to. There is a great re use it store near hear and all the people that work there are volunteers, and they donate the money they make to charity, food bank and church organizations, so is a great place to give my old tools and supplies that I can no longer use.
, I had the dry eye situation for a very long time. Of course my doctor tried all the over the counter eye drops, a prescription (Restasis 2X's daily) for dry eyes, plugs in the corners and still the eye test showed NO TEARS OR WATER. It hurt and burned, I sympathize with you.
She then said that she had tried Vital Tears on some patience with autoimmune diseases if I would like try it. It is a little expensive ($700for 6 months) and not covered by insurance. I had 7 vials of blood drawn and waited. The tiny vials came and my eyes are doing so much better. I go in 3 weeks to find out if I can discontinue the Vital Eyes and only take Restasis once a day! Maybe you can try Vital Tears. Good Luck.
I am fatigued but the prednisone keeps me going at night so I can never get uninterrupted sleep . Of course having to get up every two hours to urinate does help either.
I understand how frustrating uninterrupted sleep can be. How long does it generally take you to fall asleep after waking up, such as when you wake to urinate? Jodi, Team Member
Thanks so much for your response!
