Active todayHow Do You Cope With Hot Temperatures?Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the hot temperatures? When you are outside in the...Reactions0reactionsComments47 repliesCopingSymptomsWeather
Active 3 days agoBrain FogI am 6 months into my MG diagnosis. Right now doing OK with Pyridostigmine. Lately, I have been having trouble with brain fog & short term memory loss. I asked...Reactions0reactionsComments19 repliesCopingSymptoms
Active 3 days agoCopingcould anyone tell me what causes the myasthenia pot belly? Sue from Australia where there are no specialist myasthenia doctors....Reactions0reactionsComments3 repliesCoping
Weather All of my life I dreamed of having a place on the beach. I was always a Beachgirl. My dream came true when I bought a condo right on the...Reactions0reactionsComments1 repliesCopingWeather
How did your MG diagnosis affect you emotionally?How did your MG diagnosis affect you emotionally? It can be incredibly challenging to cope with a diagnosis of Myasthenia Gravis (MG) emotionally. Understanding and coming to terms with the...Reactions0reactionsComments0 repliesDiagnosisCopingDepression
MG with a colostomyI am wondering if anyone has an ostomy of any kind? I am having a permanent Colostomy with rectum removed in 5 days. It will be a 4–6-hour surgery. And...Reactions0reactionsComments2 repliesCoping
FeaturedHow do you handle unsolicited advice about MG?Have you ever received unsolicited advice about your MG? If so, what was the advice and how did you respond?...Reactions0reactionsComments2 repliesCoping
Pyridostigmine availabilityI take 180 mg of pyridostigmine ER twice daily, but lately I've had trouble finding a pharmacy that has it. They all tell me that they can't get it from...Reactions0reactionsComments10 repliesTreatmentCoping
Are You Religious or Spiritual?Do you identify with or employ religion or spirituality in your life? Were you this way before your Myasthenia gravis diagnosis? How have these practices, thoughts, and connections to something/someone/higher...Reactions0reactionsComments6 repliesMental HealthCopingNewly Diagnosed
Bowel and bladder problemsPlease, please do these ever subside & lessen? they're really bad...Reactions0reactionsComments1 repliesCoping