Active 6 days agoHow Do You Cope With Hot Temperatures?Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the hot temperatures? When you are outside in the...Reactions 0 reactions Comments17 repliesCopingSymptomsWeather
MG & VisionI am 68 years old and I was diagnosed with MG last March when I woke up one day and I had double vision and I couldn’t open my left...Reactions 0 reactions Comments3 repliesCoping
What is the “I choke on everything diet?”I read about a member being on this diet. My jaw gets tired easily when eating and it isn’t just when I chew steak. I’m interested in eating foods on...Reactions 0 reactions Comments5 repliesCoping
What painkillers can I takeI suffer with two bad knees. One I had replaced quite some years ago and the other needs replacing but I am reluctant due to the risk of infection. I...Reactions 0 reactions Comments2 repliesCoping
A Fatigue ScaleWhen I began having MG symptoms it occurred to me that it would be helpful in order to track the progress of the disease to have a fatigue scale comparable...Reactions 0 reactions Comments1 repliesCopingTips & Advice
What were your immediate changes after your MG diagnosis?As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...Reactions 0 reactions Comments0 repliesCopingNewly DiagnosedSymptoms
Prosthetic Contact LensesHave you tried prosthetic contact lenses? Did they improve your Myasthenia gravis eye symptoms and vision? - Jodi, Team Member...Reactions 0 reactions Comments3 repliesCopingTreatmentVision
Three crisis in 5 monthsMy Mg manifests itself in my ability to be able to walk along with vision neck muscle and not to much in facial events. It also steals my ability to...Reactions 0 reactions Comments8 repliesCopingMuscle WeaknessSpeech
Do You Suffer From Dysphoria? Feeling Dissatisfied With LifeDo you suffer from dysphoria, meaning feeling depressed, troubled, and unsatisfied with how life is going for you? How much does MG play a role in these feelings? What attempts...Reactions 0 reactions Comments0 repliesCopingDepressionMental Health
Brain FogI am 6 months into my MG diagnosis. Right now doing OK with Pyridostigmine. Lately, I have been having trouble with brain fog & short term memory loss. I asked...Reactions 0 reactions Comments4 repliesCopingSymptoms
