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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

How do you handle unsolicited advice about MG?

Have you ever received unsolicited advice about your MG? If so, what was the advice and how did you respond?...

How Do You Cope With Hot Temperatures?

Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the hot temperatures? When you are outside in the...

What is the most effective treatment for MG!

Got diagnosed 5 months ago and was started on 1 tablet of Pyridostigmine a day & now taking 4 tablets daily with 20mg of steroids which has given me severe...

Grocery Shopping Difficulties with MG

Grocery shopping with Myasthenia gravis (MG) necessitates the energy to get up and drive to the store. Even if you plan to use a store mobility scooter, it can still...

Have you experienced losing your voice?

Have you or anyone you know with MG ever experienced losing their voice, also known as aphonia? I'm curious to hear about your experiences. Any stories would be appreciated!...

Knee Pain

Do you experience knee pain or discomfort? Knee pain, while not one of the most commonly reported symptoms of myasthenia gravis (MG), can occur due to the condition's impact on...

Are You Religious or Spiritual?

Do you identify with or employ religion or spirituality in your life? Were you this way before your Myasthenia gravis diagnosis? How have these practices, thoughts, and connections to something/someone/higher...

Plasmapheresis and IVIG

I was 91 years when I was diagnosed with MG. Since then I have been treated with the usual oral meds including prednisone, mestinon, mycophenolate mofetil and infusions of Soliris...

On a scale of 1-10, how much were you able to participate in holiday activities this year?

On a scale of 1-10, how much were you able to participate in holiday activities this year?...

Loss of appetite

I have MG. I have had it for at least 3 years. About 6 months ago I started noticing that Had lost my appetite. Even for things like chocolate and...

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