Active yesterdayPyridostigmine availabilityI take 180 mg of pyridostigmine ER twice daily, but lately I've had trouble finding a pharmacy that has it. They all tell me that they can't get it from...Reactions 0 reactions Comments5 repliesTreatmentCoping
FeaturedActive 5 days agoHow do you handle unsolicited advice about MG?Have you ever received unsolicited advice about your MG? If so, what was the advice and how did you respond?...Reactions 0 reactions Comments2 repliesCoping
Are You Religious or Spiritual?Do you identify with or employ religion or spirituality in your life? Were you this way before your Myasthenia gravis diagnosis? How have these practices, thoughts, and connections to something/someone/higher...Reactions 0 reactions Comments6 repliesMental HealthCopingNewly Diagnosed
Do You Suffer From Dysphoria? Feeling Dissatisfied With LifeDo you suffer from dysphoria, meaning feeling depressed, troubled, and unsatisfied with how life is going for you? How much does MG play a role in these feelings? What attempts...Reactions 0 reactions Comments0 repliesCopingDepressionMental Health
Have You Attended an In-Person Myasthenia Gravis Event or Conference?Have you attended an in-person Myasthenia gravis event or conference? If not, do you have an interest in it?...Reactions 0 reactions Comments0 repliesAwarenessNewly DiagnosedCoping
Three crisis in 5 monthsMy Mg manifests itself in my ability to be able to walk along with vision neck muscle and not to much in facial events. It also steals my ability to...Reactions 0 reactions Comments8 repliesCopingMuscle WeaknessSpeech
Exercise and PT At 80 I expected to have some loss of strength but suspect that my weakness in legs and arms is due to MG. Blood tests haven't confirmed that but no...Reactions 0 reactions Comments9 repliesCopingExerciseMuscle Weakness
What were your immediate changes after your MG diagnosis?As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...Reactions 0 reactions Comments9 repliesNewly DiagnosedSymptomsCoping
Is the New Year Living up to Your Expectations?Is the New Year living up to your expectations? Or is it going in a direction you did not wish for? Do you blame MG for holding you back?...Reactions 0 reactions Comments0 repliesCopingDepressionTips & Advice
Does Prednisone cause hair loss? Or is it MestinonDo MG meds cause hair loss? Not sure what meds are causing it. Mark...Reactions 0 reactions Comments5 repliesCoping