Active 5 days agoI can’t talk for myself but I will tell you a true fact As you may or may not know but I’m from Sydney Australia & this is my story or should I say a fellow MGer, I met this friend in Hospital...Reactions0reactionsComments0 repliesTips & AdviceCopingAutoimmune Diseases
Active 5 days agoHow do you handle unsolicited advice about MG?Have you ever received unsolicited advice about your MG? If so, what was the advice and how did you respond?...Reactions0reactionsComments30 repliesCoping
Active 5 days agoPlasmapheresis and IVIGI was 91 years when I was diagnosed with MG. Since then I have been treated with the usual oral meds including prednisone, mestinon, mycophenolate mofetil and infusions of Soliris...Reactions0reactionsComments1 repliesTreatmentCoping
Active 7 days agoHow do you cope with fatigue?Studies show that fatigue can have major effects in people with autoimmune diseases like MG....Reactions0reactionsComments16 repliesCopingSymptoms
coping during a flairThere are times when I just don't feel comfortable seeing people. How can I relate my problem without offending?...Reactions0reactionsComments1 repliesCoping
How do you manage MG speech problems?Have you ever experienced speech problems with MG? Speech symptoms can include slurred speech, trouble forming words, a monotone voice, and more. Tell us what it's like. How do you...Reactions0reactionsComments19 repliesSymptomsTips & AdviceCoping
Brain FogI am 6 months into my MG diagnosis. Right now doing OK with Pyridostigmine. Lately, I have been having trouble with brain fog & short term memory loss. I asked...Reactions0reactionsComments31 repliesCopingSymptoms
Are You Religious or Spiritual?Do you identify with or employ religion or spirituality in your life? Were you this way before your Myasthenia gravis diagnosis? How have these practices, thoughts, and connections to something/someone/higher...Reactions0reactionsComments19 repliesMental HealthCopingNewly Diagnosed
Managing Stress & AnxietyFully eliminating life's stressors is nearly impossible, but trying to keep it at bay is helpful when managing MG symptoms. How do you practice self-care, mindfulness, and keeping stress/anxiety at...Reactions0reactionsComments14 repliesTips & AdviceCoping
Are you a routine person? Coping with the unpredictability of MGAre you a routine person? How difficult has it been for you to learn how to cope with the unpredictability of Myasthenia gravis?...Reactions0reactionsComments1 repliesTips & AdviceMental HealthCoping