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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active today

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come...

Active yesterday

What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can...

Active yesterday

New treatment (experimental?) Rystiggo

rozanolixizumab (brand name RYSTIGGO) Has anyone had any experience with this? I’m not questioning the validity of the trial, simply any after...

Active 2 days ago

Seronegative all symptoms/all negative BE and EMG/RNS

Hi everyone, I am new here and also new to myasthenia gravis. I have all negative bloodwork and a negative EMG/RNS. The...

Active 4 days ago

What questions do you wish your neurologist would ask?

When MG patients walk into a neurologist's office, they often hope the doctor will look past the MRI scans and reflex hammers...

Active 4 days ago

slurring of speech

My husband was getting infusions and all of a sudden they switched him to a different med and in a few days...

Active 6 days ago

Headaches or migraines as a primary or persistent/main symptom

Hi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is...

Active 6 days ago

Do you have problems swallowing?

Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and...

FeaturedActive 7 days ago

Unusual MG Symptoms?

Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which...

Remission

Has anybody ever heard of a complete remission with all medication being stopped (even Mestinon) and neuroligist confirming that no trace of...

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