Weight gain, anybody?
I'm becoming frantic over the fact that I've gained about 15 pounds (~7 kg) since I was diagnosed in January 2022 and more specifically since I started prednisone, which I've been on for most of the past two years. I try to stay active - I play pickleball for a couple of hours one to three days most weeks, referee soccer in season, ride my bike, hike/walk, and do pushups and other weight-bearing exercise at least once a week.
However, now that we're getting toward winter, I fear I will be unable to maintain as active a lifestyle and I'll end up picking up even more weight since the prednisone seems to supercharge my appetite. I'd be interested to hear what other folks do to help counteract the appetite-enhancing aspects of prednisone and/or how folks maintain their activity in the winter. I do have a gym membership but frankly haven't utilized it much in the past two years except for indoor pickleball during the winter - which can be pretty long here in Wisconsin!
What is the weight lose patches???
I was on high does of prednisone (60 mg) and gained about 20 pounds and my arms developed thin skin causing bruising and to cut easily. My neurologist got me off prednisone and on cellcept. He told me he guaranteed I would get diabetes if I continued to take prednisone. I lost most of my weight gain and my arms are recovering.
FYI - in January 2025 I also started cellcept and began to wean off prednisone (finished in July, IIRC). I have been almost totally asymptomatic (wrt ptosis, diplopia, slurring, etc.) on the cellcept for which I am grateful.
I am still gaining weight during the colder months. No soccer (Madison is not Santa Clara), not wanting to drive to the gym, and the sheer comfort of high-carb foods. Fortunately, glucose management hasn't been an issue for 67 years so far, so I'm not overly concerned about that. I know that I will continue to lose fitness as I enter my 70s. I've been active - and yet overweight - my entire life. I spent my 30s -early 60s refereeing over 100 youth and high school soccer games a year, but my body can't take that sort of punishment anymore, particularly being diagnosed soon after shoulder surgery. I mean - my joints and muscles still function, but not for three 80-90 minute football matches! I can still do three sets of 30 pushups in a day but do feel sore after heavy activity these days. I guess the moral of the story is: "aging sucks". Who knew? 😀
Has anyone used the weight loss patches
I guess if I was going to do something like that I'd just go "whole hog" and get GLP injections? I've not read any indication that patches are significantly effective.
Ive gained l 60 pounds
S I'm sure due to-the prednisone ! My neurologist willl lower it but if I get bad she ups the dose. Itsnhard all the mg meds do cause weight gain. I have been on zepbound for about 7-8 months I lost 30
Pounds but its a fighting battle
My doctor
Was surprised in could
loose anything
