How do you balance exercise and MG?

I weight train 2 days a week with a personal trainer. Like many others have said, you have to listen to your body. There have been more than a few times I've told my trainer it needed to be a "light" day because of how I felt. Fewer exercises and lighter weight being pushed.

I practiced yoga long before being diagnosed with MG. However, I had to change from hot power yoga to a gentler mind body approach. It took me a while to "like and enjoy" this new practice but it keeps me strong as I have come to embrace the changes and honor what my body needs. My MG began as Ocular, diagnosed with the foresight of my Opthalmologist who referred me to a neuro-opthalmologist who diagnosed the MG with bloodwork. Last July 2024,I landed in the hospital needing IVIG due to chewing, swallowing, breathing symptoms. I was okay for a few months but worsened and was hospitalized in January this year in crisis requiring intubation and more IVIG. I'm much improved now thanks to additional treatments, including physical therapy. Rebuilding strength takes time and patience. I'm learning that slow and steady is a fine pace.

I strenght train 3 x per week, and just pay attention to my fatigue level. My goal is not to lose muscle mass (where it was previously to build it) so a very different perspective. MG is all about living in the NOW! Weight, reps and sets are determined by how I feel today. My goal is always to complete 3 sets of 12 reps, and adjust weight to how my muscles react present time. At first it was psychologically hard to lower a weight, and that was made easier by the fact the I changed the goal. Not to lift to fatigue... to complete my 3-12's. Same action, different perspective and definition of success.

I have to say I just co led an adaptive yoga class in an experience room hosted by NMD Pharma at the MGFA conference and it was so amazing watching 20 plus MGers participate in exercise. Truly awesome experience.