How do you handle unsolicited advice about MG?
Have you ever received unsolicited advice about your MG? If so, what was the advice and how did you respond?
I give them the phone number of my neurologist and tell them to call her because they know a TON more about mg and how to "cure" it.
I try to direct them to God's kingdom, that we pray for in the lords prayer. That is the only real solution to everyone sickness
Not well, I stumble thru and later get angry I didn’t do better
It sounds like you probably relate to the following article: https://myasthenia-gravis.com/living/choosing-compassion. In what ways do you wish you had done better?
Jodi, Team Member
Many tell me it is all in my head get more exercise when it is my leg muscles that are mainly affected
I am so sorry to hear others speak to you in such a dismissive and insensitive manner. I can imagine how frustrating and hurtful these comments are. I truly hope you know our community cares and understands - you are not alone. How are you feeling this week? I hope it has been kind to you. I shared an article that may be something you would be interested in reading - https://myasthenia-gravis.com/living/choosing-compassion. Again, we're here for you anytime. Hugs, Jessica (Team Member)
