How do you handle unsolicited advice about MG?
Have you ever received unsolicited advice about your MG? If so, what was the advice and how did you respond?
Diagnosed at 15yo with epilepsy after having a grand mal seizure on a golf course, after taking Dilantin for over 50 years and a few more seizures, moved onto ocular MG for 8 years, with oMG recently morphing into gMG. Having received well wishes for over 70 years now, have done a great deal of smiling and thanking for well wishers😀 Unfortunately there will always be those who find it easier to give advice than taking it, find it easier to diagnose, rather than researching. Never get tired of educating these folks, who knows one day they may have a child that finds a cure😀
Most people ignore your illness because it is easier for them to think " glad it's not me ". They can't see your daily struggle with meds , MD appointments , movement and every day life. One just keeps going as best you can. Try and enjoy each day .
My dad used to tell me "Everybody's got an opinion, but NOT every opinion needs to be heard".
Just try to shrug it off. My daughter even says that I'm not off sick even though I was diagnosed 2018
