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Read conversations, start a discussion, and connect with others about myasthenia gravis.

My story

I am 65 years old. I was diagnosed with Myasthenia Gravis almost 3 years ago. It started 3 years ago with double vision. I didn’t know until 4 months later...

Surgery Yesterday

Hello, Just thought I'd share I had my thymectomy yesterday. Up walking pretty quick should be discharged tomorrow all things been well. Feel pretty drugged up. I am going to...

Thymectomy

Hello, I know there's previously been discussions about this from various people in various forms but couldn't find anything for this year or more recent. I'm having my appointment with...

Beginning to exercise after thymectomy

Beginning to exercise after having a thymectomy can be scary! Exercising with MG already is daunting for many as it means accommodating and figuring out how to adapt, https://myasthenia-gravis.com/living/exercising-again. But...

Has anyone had a transternal thymectomy?

I had a transternal thymectomy about 14 weeks ago. Whenever I lay down then get up, seems like my chest sticks to whatever is on the inside of it where...

Did You Massage Your Thymectomy Scar?

Many hospitals and health institutions recommend scar massaging a few weeks post-operation. Different massaging methods may be suggested, but they all have the same purpose. The aim of scar massaging...

How long does nerve pain last on chest after thymectomy?

I just want to know how long will I have the nerve/muscle pain since surgery? I can’t stand anything touching the incision. Any help?...

How Long Have / Did You Experience Discomfort After Thymectomy?

It has been almost 2 years since my transsternal thymectomy. I had a good amount of pain afterward, toward my stomach, sides, and back. At my follow-up appointments, my scans...

Thymectomy

Would you all please describe what it was like before and after having a thymectomy including what your recovery was like? I am most likely going to have one but...

UPDATE: Thymectomy surgery

I had my thymectomy surgery Dec 3rd and was released from the hospital the next day. It was a success. Oddly enough I am a lot more mobile than I...

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