FeaturedActive 4 days agoWhich doctor is your primary doctor for your MG?Who do you see for your care around your myasthenia gravis diagnosis?...reactions43repliesHealthcare TeamDiagnosis
Active 5 days agoCAR T Cell therapy or UCAR T cell therapyMy family member has been diagnosed with MG. It's been refractory to the first 4 infusions. He has the opportunity to enter a CAR T cell study , but really...reactionsrepliesTreatmentRefractory MGHealthcare Team
Confidence in your treatment regimen?How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time? Do you doubt faith in doctor decisions or...reactions56repliesTreatmentRemissionHealthcare Team
Do You Have a Caregiver?Do you have a caregiver? Is your caregiver someone you hired or a loved one? What has been your experience? Any advice for someone looking for or considering the assistance...reactions23repliesCaregivingNewly DiagnosedHealthcare Team
What’s something you wish your doctor knew about living with MG?It’s often difficult to express our challenges in the short appointments that we have to meet with a medical professionals. What are the top three things that you wish your...reactionsrepliesTips & AdviceHealthcare TeamSymptoms
Unprofessional/rude healthcare professionals I had a neurologist appointment today with a new neurologist I'd not met before and it was such a bad appointment. I'm the kind of person (and I also advocate...reactions2repliesHealthcare TeamCoping
Emergency room- advocating for your MG and communicating with staffHave you had an emergency room visit since having MG? If you were unaware, many drugs can trigger or worsen MG symptoms and potentially lead to a crisis. Suppose you...reactions6repliesAwarenessCrisisHealthcare Team
Are You a Diabetic With Myasthenia Gravis?Do you have diabetes as well as Myasthenia gravis? We would love it if you could share your experience and what your treatment regimen looks like....reactions4repliesHealthcare TeamNewly DiagnosedTreatment
What Different Specialists Are In Your Healthcare Team?What various specialists and doctors make up your healthcare team?...reactions2repliesHealthcare TeamDiagnosisTreatment
General questions I was diagnosed years ago, as the years have past I could do less & less without losing my breathe. I'm on IVIG twice a week every other week. My...reactions1replyDiagnosisHealthcare Team