Which doctor is your primary doctor for your MG?
Who do you see for your care around your myasthenia gravis diagnosis?
Neurologist through that recommendation list.
While my primary care doc is well aware of my MG, I have a Neurologist that controls my treatment of that. The one issue I have is that he is often out of town and that is no contact with him during that time.
that sounds frustrating. It seems like if he’s away so often, it would be helpful to have another doctor cover him while he’s away. Will your primary care doctor help you in a pinch? -Julie (team member) It can be a problem. I applied to a foundation for financial help for Vyvgart and they sent him a form but that was weeks ago and he is not back yet. Fortunately, another one came through. He is pretty good but I would probably have to go to another town in another state to find a new neurologist.
I found a muscular neurologist who specializes in MG. He is very thorough and makes sure I understand everything we talk about. I have access to his notes through the patient portal. I can also message him and generally receive a resonse the same day. Great doctor!
Neurologist. My initial Neurologist left to be at The Ohio State, so now I have a new one. He put me on Ultramaris.
