Dear Community,
My twin sister was recently diagnosed with Myasthenia Gravis, and it’s been an emotional and eye-opening time for our family. While supporting her, I realized how hard it is to find a truly supportive and understanding space — especially for people living with rare or chronic conditions.
I’m working on a small project to create a private, respectful online platform/app where people with MG, MS, POTS, and other conditions can:
- Share personal experiences (anonymously if preferred)
- Track symptoms or mood
- Join condition-specific chats
- Simply feel less alone
I'm still in the early stages and would truly appreciate any feedback — or just knowing if something like this would be helpful.
Would anyone here be interested in a space like that?
Even a quick “yes” would mean a lot. Thank you so much, and I wish you all strength and support on your journey.