How old were you when you were diagnosed with MG?
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21. While not yet diagnosed, after almost a year of intense coming and going symptoms, debilitating fatigue, many hospital visits, being diagnosed with Bell’s palsy 8+ times, and a magnesium mishap… my neurologist is finally doing a work up for MG. She trialed me on Mestinon this past week, and while it only lasts a few hours, when it’s working for those few hours I feel almost normal again, not completely but almost. She wants to complete the work up before giving a definitive diagnosis, but the fact that the Mestinon does SOMETHING is such a relief.
I hope you’re able to get some answers and a treatment plan in place soon. Please reach out anytime. All my best, Julie (team member) 
Many of us understand. Mestinon In the beginning gave us back a good degree of normalcy and independence. Mestinon is a diagnostic drug. If it works, it indicates not just MG, but usually acetylcholine antibody positive MG. I understand the up-and-down bell curve of effectiveness. I went from three pills a day to four, to extend daily symptom relief. Others take even more. But you should know that I take none now. Once my doctor got me on an immunosuppressant, I don't need it anymore. My symptoms are stable. But it's a great stop gap. For AChR positeve MG, there are a lot of treatment options. Stay patient with your doctor, who should have given you a blood test by now, and say optimistic.
I was 78 (-and now I'm 81.)
63
I was 39 but the doctor didn’t tell me what i had, I had to take what he had told me and go and trawl through the medical dictionary’s to find what had’ when I saw him again i told him what I had and asked him why he hid it from me a d he said he didn’t think I would cope with it so I told him that was not his decision to make and I had a right to know what i was dealing with. I walked out and didn’t go back to him again.
