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How old were you when you were diagnosed with MG?

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  1. I was diagnosed at 93. I had many symptoms for years but attributed all to old age. I went to a neurologist when legs and balance caused me to fall and he diagnosed spinal stenosis and leg tests were done. When my body totally collapsed I ended in hospital I was diagnosed. I’m now in assisted living for a year and for my duration and have had 3 instances where my body/legs have collapsed on trying to get into bed. The only thing to do is sleep then on waking up you are back to your “now” normal. Droopy eyelids, fatigue , hands barely working, no balance and total weakness are it. I now take 9 daily meds vs only 3 that I took for years. I’m thankful that this awlful disease didn’t surface in my younger years.

    1. 50

      1. Diagnosed at 57years old. Never had double vision. Went to doctor after noticing a droopy left eye. Referred to Neurologist, appointment, blood tests and diagnosis all within 5 weeks.
        Now 60 and reduced steroids to 6mg for 2nd time. Had to come off the steroids 1st time around as they caused severe muscle wastage in my legs. Was put on Mycophenolate whilst coming off the steroids and slowly regained muscle mass. Seemed to be stable until around 2 months after stopping steroids when I began having muscle pains and weakness in wrists, arms and shoulders.
        Was put back on 10mg of steroids and pains stopped practically overnight.Very slowly been reducing steroids and now on 6mg but pains and weakness beginning to appear again. My Neurologist’s plan was for me to reach 5mg and stay there for a while to see if things settled.

        1. I was diagnosed at 66 years old. I am now 69. It started out with double vision and droopy eyelids.

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