How old were you when you were diagnosed with MG?
Add any other details you'd like to share!
I was 3 years old in 1945.(83 now) when my mother took me to Mass. General in Boston. Dr Henry Viets (who would start the first clinic in the world for MG) examined me and on my next visit he explained to my mother what I had and said "Watch this" and gave me an inoculation of a drug he had initially gotten from a Scot doctor (Dr. Mary Walker) the visible results were almost immediately obvious and amazing. Dr Walker had had a patient with MG for which there was no treatment at the time. She noted that the symptoms were similar to those of curare poisoning and wondered if any of the antidotes to this poisoning could also treat MG. There was, and she developed a medication I still take to this day-about 80,000 tablets and still counting.
21. While not yet diagnosed, after almost a year of intense coming and going symptoms, debilitating fatigue, many hospital visits, being diagnosed with Bell’s palsy 8+ times, and a magnesium mishap… my neurologist is finally doing a work up for MG. She trialed me on Mestinon this past week, and while it only lasts a few hours, when it’s working for those few hours I feel almost normal again, not completely but almost. She wants to complete the work up before giving a definitive diagnosis, but the fact that the Mestinon does SOMETHING is such a relief.
I hope you’re able to get some answers and a treatment plan in place soon. Please reach out anytime. All my best, Julie (team member) 
Many of us understand. Mestinon In the beginning gave us back a good degree of normalcy and independence. Mestinon is a diagnostic drug. If it works, it indicates not just MG, but usually acetylcholine antibody positive MG. I understand the up-and-down bell curve of effectiveness. I went from three pills a day to four, to extend daily symptom relief. Others take even more. But you should know that I take none now. Once my doctor got me on an immunosuppressant, I don't need it anymore. My symptoms are stable. But it's a great stop gap. For AChR positeve MG, there are a lot of treatment options. Stay patient with your doctor, who should have given you a blood test by now, and say optimistic.
I was 78 (-and now I'm 81.)
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