Community Advocates

In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with myasthenia gravis every day, Myasthenia-Gravis.com brings you frequent articles, points of view and advice from leading patient advocates and experts.

Current advocates

Jazmin Clayton

Hello, Jazmin here. I was diagnosed with Myasthenia Gravis when I was 17yrs old. I had just graduated high school and was starting my freshman year of college. This all started back in 2012. Little did I know my life would change forever. First symptom: I woke up one morning and could not brush my teeth properly. Read more.

Claire Denton

My Myasthenia Gravis diagnosis came in 1995 when I was a senior in college, student teaching and planning my wedding. It was a very challenging time in many ways but I decided to face the diagnosis with as much positivity as I could muster. Over the past 26 years my family and I have battled through multiple hospitalizations and difficulties managing my symptoms. Read more.

Sally Farrier

Sally Farrier, I began having problems with my hands and being able to write more than a few sentences or keeping time to music with her hands & feet anything that required repetitive movement including eye tests at the age of 10. Read more.

Janice Koehn

December, 2008 I was diagnosed with myasthenia gravis. My symptoms began Thanksgiving Day. My first noticeable symptoms were difficulty breathing, blurred vision, & droopy eyelid. I had been to the E.R., then referred to my primary care physician. Read more.

Jessica Liao

Jessica Liao was diagnosed with a rare form of Myasthenia Gravis, anti-MuSK+ MG, in February 2019 at age 27. She had just found out she was pregnant the month prior, and led a full life with her creative small business, full-time job, and 2-year-old son. Read more.

Ashley Lujan

My name is Ashley, which is often just shortened to Ash! Im a 31 year old mom of two children aged 12 and 9. I have worked in the healthcare field for the last 4 years as a radiation therapist! Read more.

Zach McCallum

When Zach was diagnosed with myasthenia gravis, he was already, as he puts it, “a professional sick person.” Thanks to a primary immune deficiency and a handful of other medical issues ranging from the common to the complex, he’d had to give up his much-loved career as a UX designer. Read more.

Mallory San Nicolas

Mallory has been living with Myasthenia Gravis since 2013 although it wasn’t until 2015 that she received a diagnosis. As a young mom of 2 boys, it was very challenging to know something was wrong but not have the support or answers to confirm what she was going through. Read more.

Meridith O’Connor

Meridith O’Connor is a patient advocacy specialist dedicated to unveiling the value of the patient experience. Meridith founded the Merit Option, a patient-focused consulting agency that provides her a platform to educate, engage, and empower those looking to gain insight on the patient perspective. Read more.

Nour Sahib

Nour is a pharmacist working in the field of specialty medicines and community pharmacy. She received her Bachelor of Science, English and Pharmacy degrees from the University of Alberta in Edmonton, Alberta, Canada. She currently resides in Vancouver, British Columbia. Read more.

Dr. Valerie Sidhoum

Dr. Valerie Sidhoum is a Neurologist in Philadelphia. She completed her residency at the Hospital of the University of Pennsylvania where she is also completing a fellowship in Neuromuscular Disease and electromyography (EMG). Read more.

Juliana Texley

Juliana Texley has a Ph. D. in science education (with an emphasis on genetics) and has taught science at all levels for more decades than she'll admit. She was president of the National Science Teaching Association and currently writes science curriculum for online learners. Read more.

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