Community Health Leaders
In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with myasthenia gravis every day, Myasthenia-Gravis.com brings you frequent articles, points of view and advice from health leaders and experts.
Current health leaders
Shelbie Brown currently resides in New Jersey. She began having symptoms right as the pandemic hit, March 2020. Not being able to see a doctor in person right away was a huge obstacle for her. Luckily, she was able to be correctly diagnosed shortly after her symptoms began. Once she was diagnosed, her whole world changed. Read more.
Hello, Jazmin here. I was diagnosed with Myasthenia Gravis when I was 17yrs old. I had just graduated high school and was starting my freshman year of college. This all started back in 2012. Little did I know my life would change forever. First symptom: I woke up one morning and could not brush my teeth properly. Read more.
My Myasthenia Gravis diagnosis came in 1995 when I was a senior in college, student teaching and planning my wedding. It was a very challenging time in many ways but I decided to face the diagnosis with as much positivity as I could muster. Over the past 26 years my family and I have battled through multiple hospitalizations and difficulties managing my symptoms. Read more.
I have been living with MG for nearly 11 years and I have worked as a patient educator, clinical advocate and online community leader for a little over 8 years now. My own experience with MG spurred me to walk hand in hand with my fellow patients and do all I can to make their day-to-day lives a little better.
Jodi Enders is an artist, advocate, and anthropologist diagnosed with Myasthenia gravis (MG). She was misdiagnosed and incorrectly treated for Lyme disease and then Lupus throughout college before her Lupus treatment led to her first MG crisis. Read more.
Sally Farrier, I began having problems with my hands and being able to write more than a few sentences or keeping time to music with her hands & feet anything that required repetitive movement including eye tests at the age of 10. Read more.
Morgan Greene is a wellness consultant from the Washington DC area. After being diagnosed with a rare chronic illness, Myasthenia Gravis, she began blogging as a way to cope with everything she was dealing with at the time. Read more.
December, 2008 I was diagnosed with myasthenia gravis. My symptoms began Thanksgiving Day. My first noticeable symptoms were difficulty breathing, blurred vision, & droopy eyelid. I had been to the E.R., then referred to my primary care physician. Read more.
When Zach was diagnosed with myasthenia gravis, he was already, as he puts it, “a professional sick person.” Thanks to a primary immune deficiency and a handful of other medical issues ranging from the common to the complex, he’d had to give up his much-loved career as a UX designer. Read more.
Mallory San Nicolas
Mallory has been living with Myasthenia Gravis since 2013 although it wasn’t until 2015 that she received a diagnosis. As a young mom of 2 boys, it was very challenging to know something was wrong but not have the support or answers to confirm what she was going through. Read more.
Meridith O’Connor is a patient advocacy specialist dedicated to unveiling the value of the patient experience. Meridith founded the Merit Option, a patient-focused consulting agency that provides her a platform to educate, engage, and empower those looking to gain insight on the patient perspective. Read more.
Nour is a pharmacist working in the field of specialty medicines and community pharmacy. She received her Bachelor of Science, English and Pharmacy degrees from the University of Alberta in Edmonton, Alberta, Canada. She currently resides in Vancouver, British Columbia. Read more.
Juliana Texley has a Ph. D. in science education (with an emphasis on genetics) and has taught science at all levels for more decades than she'll admit. She was president of the National Science Teaching Association and currently writes science curriculum for online learners. Read more.
Deborah Vick is driven by her passion to create inclusive communities for people of ALL abilities, with special emphasis on equitable medical care, access to education, and life’s basic necessities. This, alongside the challenges created by her own long diagnostic journey, inspires her to raise awareness as to the needs of people battling chronic illnesses and /or chronic pain. Read more.
Previous health leaders
Cristiano Del Giacco
Cristiano Del Giacco is a marketing professional, Brazilian Jiu Jitsu black belt and biomedical science student. Cristiano was an athlete before his diagnosis with Myasthenia Gravis in 2018, but suffered from symptoms for roughly five years before he received the correct diagnosis. Read more.
Maynard Johnson is a self-employed manufacturer’s representative for many different companies. I am also a 50 plus year student of Myasthenia Gravis. As many of you will find you never graduate from learning about your illness. From day one of my diagnosis I have denied I even have it. Just my way of dealing with it. Read more.
Jessica Liao was diagnosed with a rare form of Myasthenia Gravis, anti-MuSK+ MG, in February 2019 at age 27. She had just found out she was pregnant the month prior, and led a full life with her creative small business, full-time job, and 2-year-old son. Read more.
My name is Ashley, which is often just shortened to Ash! Im a 31 year old mom of two children aged 12 and 9. I have worked in the healthcare field for the last 4 years as a radiation therapist! Read more.
Dr. Valerie Sidhoum
Dr. Valerie Sidhoum is a Neurologist in Philadelphia. She completed her residency at the Hospital of the University of Pennsylvania where she is also completing a fellowship in Neuromuscular Disease and electromyography (EMG). Read more.
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