I finished my second series of Vyvgart. And 3 weeks later, all the MG Symptoms came back. Waiting to get approved to try Ultimaris.
Jodi Enders Moderator & Contributor
Unfortunately, you are not the only one to say that you experienced short-lived effects from Vyvgart, which is definitely problematic when, according to the VYVGART website, "The safety of starting the next treatment cycle sooner than 4 weeks from the last treatment of the previous treatment cycle has not been established." I greatly hope you get approved soon for Ultomiris!
Jodi, Team Member
CommunityMember18b1e5 Member
I am confident that as long as I continue to take the mestinon I won't have a problem.
Jess.Hall Community Admin
glad to hear you are confident in your current treatment. I hope you continue to find it helpful. Kindly, Jessica (Team Member)
Wuwu Member
Very confident
CommunityMember9ece1a Member
Not sure what the infusion is for, but I'm feeling more activity thru my body. Like shocks or pulses.