Confidence in your treatment regimen?
How easily or difficult is it for you to have faith and confidence in your treatment regimen?
Has this changed over time?
Do you doubt faith in doctor decisions or your own choices in your treatment regimen more?
After tapering down very gradually from 40 mg of prednisolone (eight 5 mg tablets) daily, I now take just 5 mg (one tablet) daily, along with tacrolimus 3 mg daily. My condition has been very stable, and I’m very satisfied with my treatment.
Not great, but just starting on this trek. 60mg x 3 pyridostigmine. Eye was great for ~5 weeks, it is now drooping again. Fortunately, I see the neuro-ophthalmologist in 2 days, and my neurologist has started his work up.
it went well. Green light to increase PYR to 90 mg per dose (x3) “as needed” I’m happy to hear it went well! I hope these changes prove helpful. Best wishes, Julie (team member)
What are the treatments he is talking about?
i was diagnosed three weeks ago in bad flare/exacerbation. I am on high dose pred, 60mg 3x day of mestinon, had 5 days ivig which helped a lot, and starting this week on cell cept. I am toleraing mestinon well and so far the pred. It is too early to say but I am stable right now and out if danger zone. Very grateful to my doctors in a big city at large hospital. They are keeping a close eye on me.
