Active yesterdayToll Prednisone Took on Your BodyWhat impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...Reactions 0 reactions Comments47 repliesNewly DiagnosedSide EffectsTreatment
Is anyone else on azathioprine?I have been taking azathioprine now for several months, but it does not seem to be helping much for muscle weakness and fatigue. My neurology PA said it can take...Reactions 0 reactions Comments4 repliesMuscle WeaknessSymptomsTreatment
FeaturedDo You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered you the most improvement, and what doses? -...Reactions 0 reactions Comments84 repliesDiagnosisSeronegativeTreatment
NEW APPROVED MG TREATMENT for Gmg - Vyvgart HytruloSuper exciting!! The FDA has just approved Argenx’s subcutaneous injection (given in the fatty tissue just under the skin) formulation of efgartigimod, called Vyvgart Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) to...Reactions 0 reactions Comments3 repliesGeneralized MGSymptomsTreatment
3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in time and have given yourself? Mine would be:...Reactions 0 reactions Comments6 repliesNewly DiagnosedTips & AdviceTreatment
Gabapentin and Myasthenia GravisGabapentin (Gralise, Horizant, Neuraptine) is deemed cautionary with Myasthenia gravis, as it can potentially worsen symptoms. Gabapentin is used to treat seizure, nerve, and pain conditions. It can be problematic...Reactions 0 reactions Comments27 repliesNewly DiagnosedTreatmentTriggers
How Long Have / Did You Experience Discomfort After Thymectomy?It has been almost 2 years since my transsternal thymectomy. I had a good amount of pain afterward, toward my stomach, sides, and back. At my follow-up appointments, my scans...Reactions 0 reactions Comments2 repliesNewly DiagnosedThymectomyTreatment
Myasthenia Gravis and Cardiovascular MedicationMyasthenia gravis may pose a risk to patients using cardiovascular medications to treat heart conditions (coronary artery disease, hypertension, high cholesterol, and heart arrhythmias). Beta-blockers, calcium channel blockers, and statins...Reactions 0 reactions Comments3 repliesNewly DiagnosedSymptomsTreatment
What Year Were You Diagnosed With Myasthenia Gravis?What year were you diagnosed with Myasthenia gravis? How long did it take to receive a diagnosis? What treatments were available to you at the time? Have you tried any...Reactions 0 reactions Comments28 repliesAwarenessDiagnosisTreatment
Pyridostigmine (Mestinon) Shortage in UKYou may be among the many frantic over the pyridostigmine (mestinon) shortage in the United Kingdom. --- How has this affected you? Has your doctor adjust your treatment to accommodate?...Reactions 0 reactions Comments1 repliesCrisisTreatmentTriggers
