Active 5 days agoCAR T Cell therapy or UCAR T cell therapyMy family member has been diagnosed with MG. It's been refractory to the first 4 infusions. He has the opportunity to enter a CAR T cell study , but really...reactionsrepliesTreatmentRefractory MGHealthcare Team
Active 8 days agoOcular MG? Which Treatment Has Worked Best for You?Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you see any improvement? If you had ocular MG...reactions109repliesVisionTreatmentDriving
LRP4 QuestionI have the LRP4 type so unfortunately the treatment options are very limited. Most treatments are geared towards the ACHR type and MUSK type. Has anyone with LRP4 found any...reactionsrepliesTreatmentTypesGeneralized MG
Confidence in your treatment regimen?How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time? Do you doubt faith in doctor decisions or...reactions56repliesTreatmentRemissionHealthcare Team
Vyvgart vs Ultomeris I have to switch from my current IVIG to either Vyvart or Ultomeris. Has anyone tried both? Had success or concerns with either of them? Any feedback would be appreciated!...reactions5repliesTreatment
Treatment I have had progressive muscle weakness for last 10 years. They said it was an undiagnosed myopathy. A year ago I ended up in hospital as symptoms were progressively getting...reactions3repliesTreatment
Toll Prednisone Took on Your BodyWhat impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...reactions90repliesSide EffectsTreatmentNewly Diagnosed
Tremors and Myasthenia GravisHas anyone here started experiencing tremors since their MG symptoms began? If so, where are you feeling them, and how severe are they? Do the tremors coincide with any other...reactions16repliesSymptomsSide EffectsTreatment
Prosthetic Contact LensesHave you tried prosthetic contact lenses? Did they improve your Myasthenia gravis eye symptoms and vision? - Jodi, Team Member...reactions3repliesVisionTreatmentCoping
FeaturedDo You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered you the most improvement, and what doses? -...reactions181repliesSeronegativeTreatmentDiagnosis