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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 3 days ago

Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you see any improvement? If you had ocular MG...

Active 4 days ago

Anyone taking Ultomiris?

I’ve had (2) IVIg treatments and will have one more next week. I will be starting Ultomiris in May and going forward. Can anyone share experiences with this treatment? Whether...

FeaturedActive 5 days ago

Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?

Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered you the most improvement, and what doses? -...

Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...

Tremors and Myasthenia Gravis

Has anyone here started experiencing tremors since their MG symptoms began? If so, where are you feeling them, and how severe are they? Do the tremors coincide with any other...

Vyvgart vs Ultomeris

I have to switch from my current IVIG to either Vyvart or Ultomeris. Has anyone tried both? Had success or concerns with either of them? Any feedback would be appreciated!...

How do caregivers know the treatment provided by physicians is the best and most correct?

My husband of 53 years passed away from MG after doctors fumbled around attempting to find ways to treat this disease, putting him through months of in-and-out of the hospital...

Have you heard about these latest FDA-approved MG treatments?

Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...

3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?

Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in time and have given yourself? Mine would be:...

Colitis-possibly from Prednisone or IVIG

I just finished my second round of IVIG and spent the day in the hospital the next day. I was diagnosed with Colitis. ER doctor said it could be from...

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