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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 6 days ago

Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you see any improvement? If you had ocular MG...

CAR T Cell therapy or UCAR T cell therapy

My family member has been diagnosed with MG. It's been refractory to the first 4 infusions. He has the opportunity to enter a CAR T cell study , but really...

LRP4 Question

I have the LRP4 type so unfortunately the treatment options are very limited. Most treatments are geared towards the ACHR type and MUSK type. Has anyone with LRP4 found any...

Confidence in your treatment regimen?

How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time? Do you doubt faith in doctor decisions or...

Vyvgart vs Ultomeris

I have to switch from my current IVIG to either Vyvart or Ultomeris. Has anyone tried both? Had success or concerns with either of them? Any feedback would be appreciated!...

Treatment

I have had progressive muscle weakness for last 10 years. They said it was an undiagnosed myopathy. A year ago I ended up in hospital as symptoms were progressively getting...

Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...

Tremors and Myasthenia Gravis

Has anyone here started experiencing tremors since their MG symptoms began? If so, where are you feeling them, and how severe are they? Do the tremors coincide with any other...

Prosthetic Contact Lenses

Have you tried prosthetic contact lenses? Did they improve your Myasthenia gravis eye symptoms and vision? - Jodi, Team Member...

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Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?

Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered you the most improvement, and what doses? -...

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