I have had progressive muscle weakness for last 10 years. They said it was an undiagnosed myopathy. A year ago I ended up in hospital as symptoms were progressively getting worse. I ended up on ventilator and feeding tube for five months I finally got diagnosed with MG and IVIG got my breathing back and my ability to eat and drink. But I am still unable to weight bare have severe double vision. Mestinon has caused problems with my blood so I am off it for six weeks then Dr will start a new plan.
Has anyone been unable to weight bare and once they got the right drug cocktail gained it back.
Sorry for the length thank you for any help you can offer. I am starting to give up.