When meds don't work I'm 51 years old and have GMG for 5 years. I was on Ultramiris for 4 years and and had no problems at all, lived a normal life. Until the...reactions2replies
Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered you the most improvement, and what doses? -...reactions186repliesSeronegativeTreatmentDiagnosis
What about portable oxygen if I have a breathing episode?I was wondering if there is some kind of canned oxygen like athletes use that I can use when I travel, and if it would help if I get out...reactions1replyTips & Advice
Searching for relief after a near death experienceI almost died when I had my first severe flare up in January of 2021. My family doctor didn't know what was going on and called my neurologist in Little...reactions2comments