Vyvgart Injections
Hello Everyone,
Just finished the, Once - a - Week for 4 weeks Injections and waiting for the Maintenance Injections coming up.
Do not feel like the Vyvgart has helped at all.
Anyone else have a similar feeling/reaction after the first four shots ?
I was wondering if anyone skipped the maintenance shots and went back to the : Once -A - Week for four weeks, to see if another series would help ?
Thanks, Ron
Hi, thanks you for your reply. I was thinking something similar. My doctor suggested Ultomiris/Soliris, but before that I need to go on a series of meningitis shots first, because the Ultomiris can cause meningitis. I am not keen to that idea.
6 months without Vyvgart Hytrulo, just terrible streroids ? Seems like I would be going backwards in finding some kind of help/control. I see the doctor in 2 weeks.
I got my MG last October 2024 and I am 72.I've had two series of 1 injection per week for 4 weeks of Hytrulo. No one ever mentioned a maintenance injection. I found that it didn't help me so I ended up going back to IVIG but as yet it hasn't helped either. Maybe its my age (7😎. I think you should go for a second series after six weeks, then give it another six to see if it helps. Discuss this with your doc. I hope you get better.
