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Leg and Foot Cramping and Pain

Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night.

Do you experience leg pain? Describe the sensation, and if you note the treatments you are on, that would be great. Pyridostigmine is associated with cramping. But from personal experience, I believed this to cause my leg pain until I stopped mestinon, which has continued. I am sure many of you are the same way.

I look forward to seeing any trends we may note with our community here and our lower body cramps experiences.

Feel free to share any advice you have found for relief 😀
- Jodi, Team Member

  1. My leg pain has no warning and the severe cramps are unbearable. Staying hydrated I have found helps alleviate the cramps.

    1. I am so sorry to hear the cramps are severe for you! I send much compassion your way. How do you accommodate your lifestyle around this, or is it something you struggle to figure out or mentally accept?
      -Jodi, Team Member

    2. I usually get up and stretch the area, then use the heel of my hand to do deep pinpoint massage. Mentally, I know it can happen at any time so I just roll with it.

  2. yes I get pain in Knee joints I can barely walk.

    1. sorry to hear you experience such discomfort that impacts your ability to walk. Have you had an opportunity to speak with your physician about possible options for some relief? I see you recently joined our community and wanted to take this opportunity to welcome you! Glad to have you here with us! If we can help locate any MG related info or simply provide a listening ear, please reach out. We care and are here. Wishing you some relief. -Jessica, Team Member

  3. Yes. However I also have spinal stenosis which I generally attribute my pain to. I have joint pain as well.

    1. as you can see you are not alone. So many in our community experience pain and discomfort. Do you find anything helpful at providing relief? Even just temporarily? I hope so. Please feel free to reach out anytime. We care and are here. Kindly, Jessica, Team Member

  4. Yes

    1. Hi we appreciate you being here and sharing. SO many here can relate. How have you been managing this week? I hope it has been kind to you. -Jessica, Team Member

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