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Leg and Foot Cramping and Pain

Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night.

Do you experience leg pain? Describe the sensation, and if you note the treatments you are on, that would be great. Pyridostigmine is associated with cramping. But from personal experience, I believed this to cause my leg pain until I stopped mestinon, which has continued. I am sure many of you are the same way.

I look forward to seeing any trends we may note with our community here and our lower body cramps experiences.

Feel free to share any advice you have found for relief 😀
- Jodi, Team Member

  1. No. My legs are pain free.

    1. I get cramps in the back of my calve at night. Wake up feeling like I’ve walked miles.

      1. This sounds painful. Have you found anything to help calm the cramps so that you can get back to sleep? Best, Abby (Team member).

      2. I used to get the same cramps the night after competition (gymnastics) and would call for my dad to massage. Now I just stand up and walk around (sometimes have to force leg straight). Only anxiety keeps me awake!

    2. Yes

      1. I'm sorry to hear that you're experiencing this symptom. How do you deal with the pain? Have you found anything that helps to alleviate it a bit? Warmly, Abby (Team Member).

    3. I experience joint pain and I experience muscle pain

      1. so many here can relate. Have you found anything that provides you with some relief? Just in case it may be of interest, I shared an article written by one of our patient leaders and how she manages pain - https://myasthenia-gravis.com/living/dealing-with-pain. Wishing you relief. Kindly, Jessica (Team Member)

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