Leg and Foot Cramping and Pain
Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night.
Do you experience leg pain? Describe the sensation, and if you note the treatments you are on, that would be great. Pyridostigmine is associated with cramping. But from personal experience, I believed this to cause my leg pain until I stopped mestinon, which has continued. I am sure many of you are the same way.
I look forward to seeing any trends we may note with our community here and our lower body cramps experiences.
Feel free to share any advice you have found for relief 😀
- Jodi, Team Member
Yes me too. Foot cramp on top of my feet but i gave muscle cramps all over especially in my chest area which really hurts. When it starts it’s off and on for a week or so get in my hands too. My ankles get heavy and recently after a huge nerve overload where my muscles were very week and and tired my nerves were firing off and electric shocks throughout my body now that hurts. This flare up lasted 3 months. As a result i now have tiny veins that burst on my ankles and feet real bad looks awful but my feet get tired. Compression socks bought but i rarely ware them as it hurts my hands to put them on. I now use a walker but i gave no upper body strength and pit all my weight onto my hands and arms. After using my walker my hands take a long time to heal and arms are very weak too. I wonder if there is training on how to properly use a walker. At that glare up my dr. Put back on prednisone low dosage. I don’t like prednisone side effects. I told him it seems to mask symptoms and he said yes. Id rather mask the symptoms you are having then go through a flare up but what if it masks other things besides my mg, that’s what worries me cause my throat has not been the same since. Sore all the time and mire breathing choking and heart pain
Yes
Always at night or just as I am waking. Sometimes it shifts back and forth between muscle groups and can last for 30-40 minutes.
My legs sometimes feel like lead weights. Also, having asthma, it takes longer just to get my second wind.
