Leg and Foot Cramping and Pain
Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night.
Do you experience leg pain? Describe the sensation, and if you note the treatments you are on, that would be great. Pyridostigmine is associated with cramping. But from personal experience, I believed this to cause my leg pain until I stopped mestinon, which has continued. I am sure many of you are the same way.
I look forward to seeing any trends we may note with our community here and our lower body cramps experiences.
Feel free to share any advice you have found for relief 😀
- Jodi, Team Member
Foot & lower leg cramps wake me often most nights. They appear to correlate with overdoing standing, walking & even swimming. Mind you, it doesn't take much to over do things.
Yes
Hi
do you find anything provides you relief? Even just temporarily? I hope so. Wishing you well. Kindly, Jessica, Team Member
Yes. I define it as an ache like when you have the flu &/or a fever. Tylenol takes the edge off.
recently diagnosed with ocular MG after ptosis began and was put on Mestinon. Immediately had bad leg spasms, primarily at night or rest. Stopped taking it. Have been taking gabapentin 300mg at night for a year for fasciculations which may have been early warning of MG and back in January lost my voice due to partial vocal cord paralysis which was thought to be a result of a virus. Surgical procedure at Mayo fixed the voice. The pieces of the puzzle are starting to come together now. One thing i have discovered is that a big tablespoon of yellow mustard, which i despise, held in my mouth for a couple minutes then swallowed, is a failsafe for stopping the hamstring, quadracep and calf spasms within minutes. Also extreme heat pad and massage gun help. I hope this helps someone.
