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Leg and Foot Cramping and Pain

Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night.

Do you experience leg pain? Describe the sensation, and if you note the treatments you are on, that would be great. Pyridostigmine is associated with cramping. But from personal experience, I believed this to cause my leg pain until I stopped mestinon, which has continued. I am sure many of you are the same way.

I look forward to seeing any trends we may note with our community here and our lower body cramps experiences.

Feel free to share any advice you have found for relief 😀
- Jodi, Team Member

  1. Meds for restless leg syndrome helped me, but if I do not take it a couple hours before bed, then I may be in for a bad night. I end up putting on my compression stockings inorder to get some sleep.

  2. Because only steroids had any affect on my symptoms, and because I had the usual side effects on them, I have not taken any medication for many years, but manage my symptoms with good nutrition, acupuncture, a few supplements and a moderately easy lifestyle. Therefore, the muscle cramps I get are not caused by any medication. I do find that magnesium tablets help enormously.

  3. Yes

  4. I have suffered from a variety of different cramps over the years, buts its not the same as the cramp I occasionally experienced when younger . I have experienced simultaneous cramps on both lower calves so at the rear - usually after I've had a busy day. not agonising but enough to wake me up and nearly always at approx 5:45 a.m. They aren't usually of long duration and with a bit of stretching they go. More recently again after a busy day I have experienced painful cramps down one or another of my shins. ( you wouldn't think there was enough muscle there to cramp. This time for up to 30 minutes ranging through the night needing liberal applications of muscle rubs.

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