Unusual MG Symptoms?
Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which I still have). I had an almost cancerous thymoma removed robotically a year and a half ago. I have been lucky to date that I have had no other symptoms but just recently I have shoulder/neck aching and neck clicking when I turn it. Also have aching pectoral muscles/arms and jaw that comes and goes. Anyone else experienced this? I am of course hoping that it doesn't get worse as I am 2 years in to diagnoses. Any reassurance would be greatly appreciated. Thanks in advance.
Well since this was last year, things might not be the same but, I completely understand the neck pain. I have had MG since I was 9, thymectomy at 11. I'm 39 now and let me tell you MG seems to do whatever it wants whenever it want. My MG is a lot ocular but also other weakness. I think I would get neck pain from straining to see right also in my shoulders and back from straining 'wrong' when doing certain things, and pushing to hard on myself. I think its hard sometimes to really put it together why something is the way it is. I've learned 9 out of 10 times if there is anything wrong it most likely my MG is to blame even if it completely unrelated. Even though I feel lucky because there are so many more terrible illnesses people can have, MG has to be the most unpredictable and tricky I ever heard of.
I was diagnosed with MG 4 years ago. Lately the muscle cramps and aches have gotten worse. My brother got me a percussion massager last Christmas and it has been a godsend. I use it on my neck, shoulders and back and it really helps a lot. At the end of the day just before I go to bed it really helps to relax the sore muscles and helps me sleep better and the next morning I don't feel as achy or tight.
It is super good to hear an update from you! I send my wholehearted compassion your way for all you have been dealing with lately. I genuinely hope your symptoms begin to improve. Are you still on prednisone or any other treatments? Here are some articles and discussions on cramps and aches you may find interesting: https://myasthenia-gravis.com/living/dealing-with-pain, https://myasthenia-gravis.com/living/coping-with-muscle-cramping, https://myasthenia-gravis.com/living/leg-cramps-night, https://myasthenia-gravis.com/forums/leg-and-foot-cramping-and-pain, https://myasthenia-gravis.com/forums/muscle-cramping
-Jodi, Team Member
I was diagnosed with MG in my left eye, then after a sever flare of my bowel disease and hospitalization with high amounts of Steroids IV , I developed
MG clinically known as General Myasthenia Gravis . I was completely unaware of this event until I saw the head Neurologist who was managing my case
The day of discharge he told me that I was very serious and that it was going to be a rough ride . Shortly after returning home I went into MG crisis and stopping
breathing, I remember trying to figure out what was happening to me and then I realized my body was shutting down, I remember not being able to breathe and then everything went back. I regained consciousness and was breathing again.
I was very scared and upset that I was so poorly educated about this disease.
I have since then become more informed . I do get a lot of muscle aches, pain , and spasms. I use Voltairien with some relief ,rest is very important .
I can appreciate that this disease begins anew each day and it is very difficult
to make plans not knowing what your body is going to do that day.
I also have a great deal of fatigue. I will not go i to all of my symptoms
as my neurologist says I tick off all the boxes .
I wish you all well thanks for your support and sharing your experience with
MG .I can totally relate I also tick all the boxes. I was diagnosed at 19 I'm now 56 there wasn't much known about MG when I was diagnosed I'm still learning new stuff. It has come a long way. Best of luck to you.
For random aches I use volteren cream otc it works great even at much less of a dose. And tiger balm regukar strength has been a life saver for my aches along with dry brushing every evening before bed.
