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Unusual MG Symptoms?

Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which I still have). I had an almost cancerous thymoma removed robotically a year and a half ago. I have been lucky to date that I have had no other symptoms but just recently I have shoulder/neck aching and neck clicking when I turn it. Also have aching pectoral muscles/arms and jaw that comes and goes. Anyone else experienced this? I am of course hoping that it doesn't get worse as I am 2 years in to diagnoses. Any reassurance would be greatly appreciated. Thanks in advance.

  1. For some reason I have the most energy between 7-10 PM. Mornings are difficult, almost no energy

  2. was never given this. I have always been on Pyrodostigmine! Am I taking the wrong meds for my Sero negative MG?

  3. Hello, I was diagnosed with Mg in 2024. I didn't realize what was happening to me, until I got to work, and went on a job, I'm an engineer at Southland mall in Taylor,MI. I got a call to repair a door at one of the entrances to the mall. Something I've done for my 40+ years there! When suddenly I was afraid to get on a ladder. And I was only 2 rungs up. Then my wife noticed that my eyelids were closing by themselves. And my speech started getting slurred. That's when I went to a Nurolgist. I had the classic symptoms of Mg. Everything just started getting hard for me to do.

    1. Thanks Julie! The meds are working. I'm finding it's better to stay busy and be active. The medicine regimen is alot. My neurologist has me weening off the prednisone.

    2. no I have not.

  4. Curious, what’s “almost cancerous”

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