Unusual MG Symptoms?

I was diagnosed with MG 20 years ago because of double vision. I started out with a prism in one lens & now have them in both lens! I had my thymus taken out & helped my muscles but I couldn’t take any of the meds to help it. I just live with it & muscle weakness. I have noticed my left eye extremely sensitive to lights & daylight to the point that it blinds me. I had to give up driving for fear of an accident. Eye specialists just say it’s because if my blue eyes!🙄. I was wondering if anyone else has experienced this?????

I had a thymoma removed however they couldn’t remove the entire tumor due to its location. My thymus was also removed at that time. 2 years later double vision occurred. When it happened I suspected mg. I was fortunate to see a neurologist who specializes in mg and was prescribed mestinon which has stopped my double vision. Other than being more tired I am doing well and exercise on a regular basis to keep as fit as possible.

I’ve been dealing with intermittent double vision for the past two years. After multiple doctor visits, MRIs, and CT scans, I finally saw an ophthalmologist who ordered a blood test—this confirmed his suspicion of myasthenia gravis. The symptoms come and go, but a short course of Prednisone usually improves things for me within four or five days.
Before I tried Prednisone, I used a temporary Fresnel prism patch for a few weeks to confirm the correct prescription for the double vision. It worked well, so they made me a permanent prism lens for one eye, and it has helped a lot whenever the double vision returns—like it is right now.
After a seven-month wait, I finally have an appointment with a neurologist on Monday, and I’m really hoping to get some clearer answers.

Regarding your double vision.....Do what ever you can do to make an appointment with an ophthalmologist. My double vision was really bad and sitting in a car looking through a windshield sometimes it would be triple vision. They have something called a Prism. My doctor put a temporary one in my eyeglasses to see if it would help. It was life changing for me. With my eyeglasses my vision is perfect. After the test with the temp one I had a permanent one ground into my lens. With all the other issues I deal with, The double vision is gone while wearing my glasses. Hope this helps.
Steve D.