Unusual MG Symptoms?
Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which I still have). I had an almost cancerous thymoma removed robotically a year and a half ago. I have been lucky to date that I have had no other symptoms but just recently I have shoulder/neck aching and neck clicking when I turn it. Also have aching pectoral muscles/arms and jaw that comes and goes. Anyone else experienced this? I am of course hoping that it doesn't get worse as I am 2 years in to diagnoses. Any reassurance would be greatly appreciated. Thanks in advance.
I had the same symptoms for a couple of months after being treated with Gamaked . One day the pain went up to behind my left ear then my head and turned out to be a stroke. The side effects listed on their website mentioned vessels rupturing for unexplained reasons. It was omitted after I complained because they wanted to continue charging for the medication which is extremely expensive
Hi Terri
I don't know your age, I have had the same, but I got MG at age 80, and being a guy
just thought such ackes and pains were due to old age but mine came and went away. My right arm has remained a weak limb for the most part, but I have good days and not-so-good days.
hope you have more good days then bad
take care
geraldHello
Thanks for your insight. I was diagnosed with generalized MG a little more than 3 years ago. I was a mess back then, now my symptoms have been moderated not eliminated. My biggest problems now are ocular, continued muscle weakness in legs and neck and intermittent swallowing issues.
I am on: Mestinon, prednisone, weekly IVIG, and every 6 months rituximab. I am also on many other drugs like Mepron, Rx calcium, Rx Magnesium, Rx Nexium, viberzi and more. Last time I counted I had 23 different prescriptions.I am 78 year old male. I was diagnosed with Ocular (only left eye) M. G. about 3 years ago! I am in Cellcept & Mastonin. My symptoms of droopy eyelid are almost gone.
Only problems:
-I still have breathing issues - out of breath while walking ONLY if I carry weights as low as 15 lbs.
-Frequent stomach issues!
My Neurologist has recommended Cellcept & Mastonin 3 times per day from 4 times day.
My Yoga exercises are helping me fo regain stamina, balance etc.
