Ocular MG? Which Treatment Has Worked Best for You?
Do you have ocular Myasthenia gravis or at one point did before it turned generalized?
What treatment, if any, has helped you see any improvement?
If you had ocular MG that turned generalized, how long did the treatment keep your MG at an ocular level/type?
Originally started with ocular then moved to generalized
Thymectomy with Mestinon 60mg x 3 a day - lasted approx 2 years then flare ups needed steroids with increased dosage til 75mg weaned down to 15mg for years
Imuran added and well controlled
With 2mg prednisone
20 years on Imuran until terrible effects became an issue
Started low dose naltrexone
Good Mg for 4 yearsI have ocular mg also generated. My double vision was sporadic. Worse when fatigued and at night. My opthalmologist added prisms with my glasses and I don’t have problems.
Vyvgart infusions & cellcept
I’ve had binocular oblique diploma with ptosis for a few years. I take five 60mg tablets of mestinon daily which controls it.
