How do you feel about using technology to help manage health? Take our survey here.
caret icon Back to all discussions

Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized?

What treatment, if any, has helped you see any improvement?

If you had ocular MG that turned generalized, how long did the treatment keep your MG at an ocular level/type?

  1. I was treated with just Prednisone for ocular MG before being diagnosed and it worked. I had both Ptosis and double vision. The MG then became generalized and Pyridostigmine was added. Then I had 5 or 6 courses of IVIG and now trying Vyvgart Hytrulo. So far, the ocular stuff hasn't returned.

    1. Pyridostigmine

      1. My Ocular-Neurologist thinks Azathioprene has stabilized my OMG.

        1. I also find that a healthy diet, stretching, regular (not heavy) daily, exercise makes me tired at first, but after resting, makes me feel much better overall.

      2. Pyridostegmine and prednisone

        Please read our rules before posting.