Ocular MG? Which Treatment Has Worked Best for You?
Do you have ocular Myasthenia gravis or at one point did before it turned generalized?
What treatment, if any, has helped you see any improvement?
If you had ocular MG that turned generalized, how long did the treatment keep your MG at an ocular level/type?
REST
Mestinon generic 3X daily 60mg. Mono (left eye) Ocular MG. Never generalized. Diagnosed with rapid onset ocular MG in March 2025 with Thymoma (tumor). Thymectomy in June 2025. Thymoma was found to be benign, thank God. Immediate improvement after surgery, then symptoms worsened slightly. Now seeing gradual improvement. I would put my vision back to 70% - 80% pre-diagnosis. I have good days and bad days. Asked the doc's to order blood tests before surgery and 60 days after surgery. All three AChR antibody tests (Binding, blocking, and modulating) show massive reduction. Modulating is below thresholds with blocking abs close behind. Neurologist says AChR antibody tests cannot be clinically shown to predict remission. My options in December are IVIG infusion, Ultomiris infusion, or Hytrulo weekly injections. I am hoping that in my case, the AChR ABS tests are an indication of my prognosis. Time will tell.
I had eye lid surgery no more droppy eyelids best choice i ever made
Back to normality.Preservision Areds 2
