Ocular MG? Which Treatment Has Worked Best for You?
Do you have ocular Myasthenia gravis or at one point did before it turned generalized?
What treatment, if any, has helped you see any improvement?
If you had ocular MG that turned generalized, how long did the treatment keep your MG at an ocular level/type?
Prednisone
I was diagnosed with ocular MG one year ago. I take mestinon which has stopped the double vision and have not had any other progression.
Happy for you! Was the double vision "side by side" or one was "higher" than the other (my issue) ?? Thank you.
My double vision was vertical
I noticed everyone saying mestinon and not the generic pb. Is that due to it not working for you? I feel they are not the same yet I cannot get mestinon due to cost of $1000+. Any thoughts, ideas.
@I have the generic but what I mean is I feel it does not help my vision at all. But real mestinon did. I am wondering if anyone else feels like the generic is not as effective. Thanks for your reply. I have had MG for 51 years since age 14. 
Hi Penance. Wow. 51 years. You are the expert here. Have you been using Mestinon all that time? It is usually just a stop gap medication and it can become less effective with long term use. Are you also using an immunosuppressant like Azathioprine? If not, I'd ask my doctor about that.
My experience is that generic Mestinon worked wonders for me and I never used anything but the generic. But about eight months into an Azathioprine regimen I stopped taking Mestinon and now I don't need it at all.
Please note that Mestinon does nothing to reduce the amount of bad antibody in your blood. It just helps you cope. My preference is to reduce production on the antibody.
Rest and mastinon
Yes! Halfway thru the day I need to rest at least 40 min. with cold pak on my eyes. I only have MG Occular at this time. Me too!
