Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?
Are you diagnosed with seronegative MG?
Which treatments have you been approved for? Which have you tried?
Which form of treatment offered you the most improvement, and what doses?
- Jodi, Team Member
I have SN. Is anyone having pain? I haven’t found a treatment that really works. I am always so tired.
I have seen many people comment about the pain that they are experiencing with MG.
I found this article that discusses alternative ways that may help reduce pain.
https://myasthenia-gravis.com/clinical/holistic-therapies-for-pain
Chelley (Team Member)
Mestinon did not help and starting IVIG infusions Soon. Has anybody had it and how was the first week?
I was wondering if you started the IVIG treatment yet and if so how did it affect your symptoms?
Also how might you feel about sharing what your symptoms are?
Yes
Yes. Mestinon helps me as I know the other meds aren’t approved when you are SN. I do wonder whether other meds would show great improvement over mestinon?
