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FeaturedActive 4 days ago

Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?

Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered you the most improvement, and what doses? -...

Sorting out MG and non MG symptoms - balance vs. weakness

context: my diagnosis is only tentative seronegative - but I have had classic MG-type symptoms for over 20 years with no meds prescribed so far. In an effort to better...

Help! I have seronegative Myasthenia Gravis and Rheumatoid Arthritis! I am getting worse! My Neurologist doesn't listen to me!

I am desperate to find a doctor who cares.. Getting weaker and very dizzy and fall a lot and am in pain. Have seronegative MG with breathing, talking, swallowing and...

Losing My Voice

I'm Seronegative and have been losing my voice on and off for the past couple of months with no changes in medication or other factors such as a secondary illness...

Seronegative/chemical/toxin exposure

Recently it has come out that there was a company less than a mile away from where I grew up that was dumping toxic chemicals. Many people have had cancer...

Ocular MG

Hi All, 34yo male I have had Ocular MG for about 10 years now. My only symptom is double vision (and its severe). Usually when the bouts of double vision...

How Often Do You Receive IVIG infusions?

Do you receive IVIG (intravenous immunoglobulin) infusions? If so, how often? https://myasthenia-gravis.com/living/ivig-outcome...

Do You Have Seronegative MG and Had Insurance Deny Coverage for Treatments?

Do you have seronegative Myasthenia gravis and have had a problem arise where your insurance is denying coverage for specific treatments? Or have they stopped covering a treatment once you...

Acetylcholine Receptor Binding Antibodies

My husband was tested for Acetylcholine Receptor Binding Antibodies 14 yrs ago and was told he was NEGATIVE! Recently watched a youtube video of MGFA National Patient conference and Myasthenia...

Cogan's lid twitch

I have tested negative for the antibodies, but I think I still might have the ocular version. I did the coggins eyelid twitch test at home and it looks positive...

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