Active todayHow do you get diagnosis when you keep getting turned down from doctors?So I'm new to this whole thing. And this site, to which im entirely grateful for. I am extremely frustrated, and I don't know what to do now, and i...Reactions 0 reactions Comments9 repliesSeronegative
Active 6 days agoSorting out MG and non MG symptoms - balance vs. weaknesscontext: my diagnosis is only tentative seronegative - but I have had classic MG-type symptoms for over 20 years with no meds prescribed so far. In an effort to better...Reactions 0 reactions Comments1 repliesMuscle WeaknessSeronegativeTriggers
Im frustrated with testingI started with pretty extreme weakness in my legs and pain in my back and hips. My primary ruled out orthopedic causes and referred me to a neurologist. I am...Reactions 0 reactions Comments4 repliesCopingMuscle WeaknessSeronegative
Cogan's lid twitchI have tested negative for the antibodies, but I think I still might have the ocular version. I did the coggins eyelid twitch test at home and it looks positive...Reactions 0 reactions Comments2 repliesDiagnosisSeronegative
Reference ranges make no senseI had a myasthenia gravis work up from LabCorp and the reference ranges do not match the reference ranges that I was able to find on Mayo clinic's website here's...Reactions 0 reactions Comments1 repliesDiagnosisSeronegativeTips & Advice
Seronegative MGGood Morning! I recently was diagnosed with MG. Going next week to have a scan of the Thymus and discussion after with MG Neuro on the next steps. Nervous about...Reactions 0 reactions Comments3 repliesSeronegativeTips & Advice
FeaturedDid you test positive for any MG antibodies?AChR, MuSk, LRP4? Are you seronegative? Don't know or not sure? Share your experiences here...Reactions 0 reactions Comments13 repliesTypesSeronegativeDiagnosis
Seronegative myasthenia Does anyone have any input on thymectomy for seronegative MG Thanks...Reactions 0 reactions Comments3 repliesSeronegative
