Sorting out MG and non MG symptoms - balance vs. weaknesscontext: my diagnosis is only tentative seronegative - but I have had classic MG-type symptoms for over 20 years with no meds prescribed so far. In an effort to better...Reactions 0 reactions Comments4 repliesMuscle WeaknessSeronegativeTriggers
Muscle WeaknessI have been falling for 3 years, in the last 2 years I've fallen 22 time. With good luck so far haven't broken anything. But I am afraid to go...Reactions 0 reactions Comments7 repliesDrivingExerciseMuscle Weakness
Is anyone else on azathioprine?I have been taking azathioprine now for several months, but it does not seem to be helping much for muscle weakness and fatigue. My neurology PA said it can take...Reactions 0 reactions Comments4 repliesMuscle WeaknessSymptomsTreatment
CBD and how it is good or bad for myasthenic patients.With sore muscles I would like to use CBD cream. I am concerned that the weak muscles might not respond well. At the same time would it be a real...Reactions 0 reactions Comments4 repliesMedical MarijuanaMuscle Weakness
Exhaustion?Hi, I'm not (yet?) diagnosed with MG, but I have a strong suspicion, and my doctor does too and is currently doing tests to check on it. Usually, my symptoms...Reactions 0 reactions Comments3 repliesMuscle WeaknessSymptoms
Three crisis in 5 monthsMy Mg manifests itself in my ability to be able to walk along with vision neck muscle and not to much in facial events. It also steals my ability to...Reactions 0 reactions Comments8 repliesCopingMuscle WeaknessSpeech
Fatigue/exhaustion in arms and legsI was diagnosed in December 2022 with MG. It seems that some of the most common and bothersome symptoms I have experienced are exhaustion/fatigue in my arms and legs at...Reactions 0 reactions Comments2 repliesDrivingExerciseMuscle Weakness
Neck PainDo you have Myasthenia gravis and experience neck pain? https://myasthenia-gravis.com/clinical/pain What does the sensation feel like, and when do you notice it? Have you found any remedies to help? As...Reactions 0 reactions Comments0 repliesMuscle WeaknessSymptomsTips & Advice
Share some medications that have been proved to be useful for CMS patients.Hii everyone! I have a neurological disorder called congenital myasthenic syndrome (CMS). Despite trying various medications, none of them have been effective. My neurologist has suggested ephedrine treatment, which has...Reactions 0 reactions Comments1 repliesMuscle Weakness
Pretty sure I have MGHello! I have a long and complicated history so I won’t get too detailed with it. I have been trying to get a diagnosis for my muscle weakness and mobility...Reactions 0 reactions Comments3 repliesMuscle Weakness
