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Read conversations, start a discussion, and connect with others about myasthenia gravis.

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Do you have problems swallowing?

Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and https://myasthenia-gravis.com/living/barium-swallow-experience...

Active 3 days ago

Sorting out MG and non MG symptoms - balance vs. weakness

context: my diagnosis is only tentative seronegative - but I have had classic MG-type symptoms for over 20 years with no meds prescribed so far. In an effort to better...

My neck gets so tired and tight.

I have mg. Dr will say that there isn't any pain with mg. Than why does my neck and shoulders hurt so bad? It's like I've been trying to hold...

IVIG Side Effects

IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...

Tremors, muscle twitches

Hello dear forum friends. I’m a newbie here and learning a lot from you all. I am AChR positive, bulbar presentation with lost voice and swallowing issues. Did 5 plasmapheresis...

What Percentage of Your Day Is Impacted by MG?

What percentage of your average day is impacted by MG? This could be a time when MG is limiting you or your energy, when your symptoms are acting up, when...

Shaking (tremor) and myasthenia

Hello! I was diagnosed with myasthenia gravis almost a year ago. I had slurred speech, difficulty swallowing and chewing, and than after some time my hands would get weak. The...

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come out. I've been using catheters on and off...

Difficulty Layering Clothes with Myasthenia Gravis

Having just returned from a chilly adventure up north, I couldn’t help but reflect on how much I take my warm Florida weather for granted. The struggle of layering clothing...

Three crisis in 5 months

My Mg manifests itself in my ability to be able to walk along with vision neck muscle and not to much in facial events. It also steals my ability to...

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