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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 5 days ago

IVIG Side Effects

IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...

Active 7 days ago

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come out. I've been using catheters on and off...

Fatigue/exhaustion in arms and legs

I was diagnosed in December 2022 with MG. It seems that some of the most common and bothersome symptoms I have experienced are exhaustion/fatigue in my arms and legs at...

Sorting out MG and non MG symptoms - balance vs. weakness

context: my diagnosis is only tentative seronegative - but I have had classic MG-type symptoms for over 20 years with no meds prescribed so far. In an effort to better...

Initial Treatent Experiences

As I said in my first post yesterday, I am so thankful for my family doctor. He did not know what was wrong with me, but he did not let...

Exercise and PT

At 80 I expected to have some loss of strength but suspect that my weakness in legs and arms is due to MG. Blood tests haven't confirmed that but no...

Cellcept induced muscle strains/problems

I started CellCept the end of August, 2024. I write this on 4/9/25 to give you a frame of reference, so I've been on it just short of 9 months...

Do you have problems swallowing?

Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and https://myasthenia-gravis.com/living/barium-swallow-experience...

Muscle Weakness

I have been falling for 3 years, in the last 2 years I've fallen 22 time. With good luck so far haven't broken anything. But I am afraid to go...

Help with Cramping

I have had cramping. For some reason Mango helps it. If I drink pure Mango juice, I don't cramp. If I do cramp, I have Kirkman Epsom salt cream from...

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