caret icon Back to all discussions

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come out. I've been using catheters on and off for the past couple of years. Does anyone else have similar issues?

  1. The latest research shows a large percentage of MG patients suffer from AChR antibody induced autonomic system disorders. The autonomic system regulates the function of those muscles and processes that are automatic and not under your control. Gastro-intestinal issues, bowel and bladder problems and many other symptoms are commonly reported. Both constipation and diarrhea are common results. Like the MG attack on voluntary muscles, MG associated autonomic disorder is not curable. Immunosuppressants may help. Otherwise, your doctor can prescribe drugs to help control the symptoms.

  2. The Mestinon is a killer for me. I have bowel movements with very little warning and they are most uncomfortable. I consider it a small price to pay considering the constipation I encountered each trip to the hospital. On one night I had a suppository and 3 enimas to get me going. I would rather have this problem. Cause the Mestinon at 240 mg a day isn't going away.

  3. I do not take any medication for MG only IVIG is the only thing that helps. My bladder stopped holding urine at all. May be Surgery coming up.

  4. I have bowel issues & cramping which, I am sure is related to the "mestinon." I was unable to take the tablets because of extreme bowel issues, so it was discontinued & I am now taking it in "compound" form & have reached the recommended dosage. _ Gail.

Please read our rules before posting.