Does anyone else have bowel/bladder issues with MG?
Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come out. I've been using catheters on and off for the past couple of years. Does anyone else have similar issues?
I have bladder issues, some days worse than others. I wear pads. The doctor said when I had the mestinon pills that it was a side effect, but it has not gotten better, except some days. I did the exercises for pelvic floor, and was very weak, then one day it went so strong it caused me to bleed. Let off the pressure now so it can heal up, it is improving, but have to be careful or I will tear something again.
You may be interested in these articles: https://myasthenia-gravis.com/living/urinary-incontinence-solutions & https://myasthenia-gravis.com/clinical/bladder-problems 😀
Jodi, Team Member
try Choline & Inositol, it seems to help. Also check to see if you are Ciliac or gluten intolerant
I also have the bowel and urine problem. I wear always all the time now. My eyes go shut on me and my speech is slurry. I’m having problems swallowing. So when I read all these other comments I know I’m not alone. Thank you all and I pray you all get this mg under control as I wish for myself.
Hello, it's been some time since we last heard from you. We just wanted to reach out and let you know that we're thinking of you. We hope you're doing well and we'd love to catch up and hear about how you've been.
-Jodi, Team Member
has anyone tried a sacral nerve stimulator? I know it helps with both retention/constipation and incontinence. Its been recommended to me couple times by GI doctors and urologists, but I wasn't sure if it would be safe to have with myasthenia I guess since it works on your nerve
I do not see mention of that on our website, but I did find this article that discusses the topic and mentions Myasthenia gravis if you have yet to see it: https://www.gastrojournal.org/article/S0016-5085(05)01063-2/fulltext Jodi, Team Member