Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Being new in the community.

Hi, my name is Fleur I'm nineteen and I got officially diagnosed around a week ago. I've been really struggling currently and feeling a little lost. I've started mestinon 3...

At first mestinon now start of prednisone

Nothing seems to work long term mestinon worked short term nothing seems to help I’m Starting 10mg prednisone but it’s supposed to worsen before helping and that’s what’s happening...

Vyvgart Hytrulo journey

I want to start a thread to post my experience with Vyvgart Hytrulo as a treatment for gMG. It is not easy to get an understanding of what is required...

Autoimmune Conditions Common With MG

"Like many other autoimmune conditions, research shows that people who develop MG may have inherited genes that make them more likely to develop autoimmune conditions. Doctors also know that people...

Occular MG

My eye lid started drooping one week ago and my other eye double vision. My blood pressure went very high so the ER first assumption was a stroke did ct...

Myasthenia-gravis

I have not been diagnosed with OMG but I have read a lot about this condition after suffering from Bell's Palsy, I had double vision and drooping eyelids, loss of...

My neck gets so tired and tight.

I have mg. Dr will say that there isn't any pain with mg. Than why does my neck and shoulders hurt so bad? It's like I've been trying to hold...

Just had 1st ivig infusion-any success stories?

Hello, I am newly diagnosed with MG (2 months ago), neuro put me on pyridostigmine right away. It took about 2 weeks to start working and whether coincidental or not...

Double vision

Diagnosed in 2024. I have no peripheral vision and have double vision always minimum leg cramps. What do people take for vision?...

Help! I have seronegative Myasthenia Gravis and Rheumatoid Arthritis! I am getting worse! My Neurologist doesn't listen to me!

I am desperate to find a doctor who cares.. Getting weaker and very dizzy and fall a lot and am in pain. Have seronegative MG with breathing, talking, swallowing and...

Categories

Select a category to find topics that interest you.