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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 3 days ago

Occular MG

My eye lid started drooping one week ago and my other eye double vision. My blood pressure went very high so the ER first assumption was a stroke did ct...

Active 6 days ago

Vyvgart Hytrulo journey

I want to start a thread to post my experience with Vyvgart Hytrulo as a treatment for gMG. It is not easy to get an understanding of what is required...

Myasthenia-gravis

I have not been diagnosed with OMG but I have read a lot about this condition after suffering from Bell's Palsy, I had double vision and drooping eyelids, loss of...

My neck gets so tired and tight.

I have mg. Dr will say that there isn't any pain with mg. Than why does my neck and shoulders hurt so bad? It's like I've been trying to hold...

Being new in the community.

Hi, my name is Fleur I'm nineteen and I got officially diagnosed around a week ago. I've been really struggling currently and feeling a little lost. I've started mestinon 3...

Just had 1st ivig infusion-any success stories?

Hello, I am newly diagnosed with MG (2 months ago), neuro put me on pyridostigmine right away. It took about 2 weeks to start working and whether coincidental or not...

Double vision

Diagnosed in 2024. I have no peripheral vision and have double vision always minimum leg cramps. What do people take for vision?...

Help! I have seronegative Myasthenia Gravis and Rheumatoid Arthritis! I am getting worse! My Neurologist doesn't listen to me!

I am desperate to find a doctor who cares.. Getting weaker and very dizzy and fall a lot and am in pain. Have seronegative MG with breathing, talking, swallowing and...

Swallowing-Lungs-kidneys with Myasthenia Gravis

I have lung failure with my Myasthenia Gravis. I use to be incubated due to the failure. When nonvolatile acids that are usually moved by the lungs, and must be...

New Mg symptoms or something else.

I have some new symptoms not sure if it’s Mg related. My middle, ring and pinky finger will curl in towards the palm of my hand. The other problem is...

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