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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 6 days ago

Recently I found out I had MG

I was told I have MG about 2 month ago and I’m scared to death about what’s lies ahead of me in this journey. Started with my right eye lid...

How old I was when I was diagnosed

I was 36 years old and it was 12/16/2006, my oldest son’s 16th birthday....

Cellcept, prednisone, and new treatment

So I'm currently taking the above meds along with mestinon as needed. Looking to maybe add on one of the newer meds. Has anyone started one of the newer treatments...

Ear Pain

Has anyone experienced ear pain. The pain is not like an ear ache. It’s more like the outer part of your ear. My ENT Has treated it with drops and...

Being new in the community.

Hi, my name is Fleur I'm nineteen and I got officially diagnosed around a week ago. I've been really struggling currently and feeling a little lost. I've started mestinon 3...

At first mestinon now start of prednisone

Nothing seems to work long term mestinon worked short term nothing seems to help I’m Starting 10mg prednisone but it’s supposed to worsen before helping and that’s what’s happening...

Vyvgart Hytrulo journey

I want to start a thread to post my experience with Vyvgart Hytrulo as a treatment for gMG. It is not easy to get an understanding of what is required...

Autoimmune Conditions Common With MG

"Like many other autoimmune conditions, research shows that people who develop MG may have inherited genes that make them more likely to develop autoimmune conditions. Doctors also know that people...

Occular MG

My eye lid started drooping one week ago and my other eye double vision. My blood pressure went very high so the ER first assumption was a stroke did ct...

Myasthenia-gravis

I have not been diagnosed with OMG but I have read a lot about this condition after suffering from Bell's Palsy, I had double vision and drooping eyelids, loss of...

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