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Read conversations, start a discussion, and connect with others about myasthenia gravis.

CAR T Cell therapy or UCAR T cell therapy

My family member has been diagnosed with MG. It's been refractory to the first 4 infusions. He has the opportunity to enter...

Refractory AChR+ gMG Flares: How Long Can They Last?

Have had a very bad flare since exactly April 1, 2025 (no joke) and it still shows no sign of going away...

Myasthenia gravis and adverse reaction to the meningococcal vaccine?

Do you have Myasthenia gravis and had an adverse reaction to the meningococcal vaccine required before starting the MG treatments Ultomiris, Rystiggo...

Zilbrysq (Zilucoplan) users and past users, how has your experience been with Zilbrysq?

Hi there, fellow Zilbrysq (Zilucoplan) users and past users! How has your experience been with Zilbrysq? Did you notice improvement with zilbrysq?...

Rystiggo (Rozanolixizumab-noli) users and past users, how has your experience been with Rystiggo?

Hi there, fellow Rystiggo (Rozanolixizumab-noli) users and past users! How has your experience been with Rystiggo? Did you notice improvement with rystiggo?...

Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users, how has your experience been with Vyvgart Hytrulo?

Hi there, fellow Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users! How has your experience been with Vyvgart Hytrulo? Did...

Rituxan (Rituximab) users and past users, how has your experience been with Rituxan?

Hi there, fellow Rituxan (Rituximab) users and past users! How has your experience been with Rituxan? Did you notice improvement with Rituxan?...

Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris?

Hi there, fellow Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? Did you notice improvement with Ultomiris?...

Soliris (Eculizumab) Outcome & Side Effects

Eculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you...

Refractory Mg-Does Your MG Not Cooperate With Treatment?

Do you have refractory MG? If you are unsure of this term, refractory MG refers to anyone with MG in which: "MG...

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