Refractory Mg-Does Your MG Not Cooperate With Treatment?

Do you have refractory MG? If you are unsure of this term, refractory MG refers to anyone with MG in which:
"MG symptoms that do not improve with typical drugs (including steroids, acetylcholinesterase [AChE] inhibitors, or at least 1 immune system-suppressing drug)
Relapses that occur when trying to wean off of treatment
Symptoms that require regular rescue therapy with intravenous immunoglobulin (IVIG) or plasma exchange
Severe side effects to common MG drugs that make treatment difficult or impossible
Recurrent MG crises (potentially life-threatening exacerbations) despite being on treatment"
(https://myasthenia-gravis.com/clinical/treatment-refractory).

If you do have refractory MG, do you/did you have a thymoma?

Do you know the type of MG antibodies you have?

What has the process of attempting to treat your MG looked like?

- Jodi, Team Member