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Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid?

How was your experience weaning off the medication? Have you struggled to do so without adverse reactions? - Jodi, Team Member

  1. Although there are 100s of bad side effects of Prednisone there are 100's of good things it can do. I was diagnosed with Fibromyalgia in 1991 and 2 years ago my doctor changed that to Polymialgia which is treated with Prednisone. Anyone who actually has Fibromyalgia knows the constant joint pain which is the same ache you have when you have the flue, they will also know about the constant low grade fevers that come with Fibromyalgia, and a bunch of issues. My doctor put me on 15mg of Prednisone and my body aches went away for the first time in more than 40 years. Unfortunately the increase in eye pressure got it reduced to 10mg and it is no longer working. At 15mg I could go to the bathroom normal no more constipation to diarea all week long. I am back to that. Dumb eyes

  2. been on pred 60mg 3 weeks. newly duagnosed in bad exacerbation. my skin is dry and feels thin. i had ivig too. my breathing is much stronger. if i take pred before 9a, no insomnia. appetite getting stronger…. possible moon face. starting on cell cept this week. i hope i can get off pred fast. i wear a gcm and my blood sugar goes high if i wat crackers… sticking to whole foods for niw. avoiding junk and it tends to stay in range. cell cept ir imuran seem like the way to go off pred. gonna try to keep pred for flares.

  3. Be carefull with Prednisone. I went from 5 mg then 10 then 15 and I was finally getting some relief until the pressure in my eyes skyrocket up to 34 damaging my Optic nerve. Now I have Glaucoma and had to reduce the prednisone down to 10mg and everything hurts. If the pressure remains above 20 I will need to reduce it more. My Optometrist found my Myasthenia Gravis during testing. He has several patients who have the same symptoms who have completed diagnosis. I am still in the diagnostic stage.

  4. My pulse rate went down to 52. Became very lethargic and gaspy. Same reactiion with Mestidone. Now on SCIg. Was on IVIg for 60 weeks.

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