I’m new to MG and started Mestinon about 3 weeks ago. It made a huge difference but I still want more! I want to be able to do the exercises and activities that I could do before, but I’m afraid that will never happen. At this point, it’s still exciting to be able to buy groceries for myself instead of having to use Instacart. So I count grocery shopping as “exercise” and make sure my step counter is capturing those precious steps.
A year ago my routine was to get up early, walk 1.5-2 miles with my greyhound, do 30-45 minutes on my elliptical, shower, breakfast and be at my computer by 8am. Those days are long gone now.
Since starting Mestinon, I’ve been able to work up to a short walk when the med is at peak levels. But I tried doing that same walk at noon in the heat and sun the other day and barely made it back home. I was very disheartened by that.
I used to be a long-distance swimmer and would like to try swimming and see how I do with it, but I don’t have easy access to a pool.