How can friends and family best support someone with MG?
How can loved ones support and comfort you? What strategies and tips do you have for communicating your needs with family and friends? For any caregivers, what are some ways you help or comfort someone with MG?
Everyone needs to see a nail in the head , YouTube
Families , and friends , need to show they care , you are a important person , your quality of life means so much , all it takes is a smile a kind word ,to let them know. you understand and want to help, kindness goes a long ways.
It's so true that showing care and compassion can greatly impact the happiness of those of us living with MG. A simple smile makes us feel valued and supported. I think you will resonate with the following article: https://myasthenia-gravis.com/living/community-building Jodi, Team Member
Understand that my energy fluctuates. I may not be able to do something I had agreed to do on a certain day.
that is a pivotal thing for loved ones to understand and could be so helpful. Do you find your family and friends to be understanding of this? I hope so. How are you doing with your energy levels this week? Please know we get it and are here for you. Kindly, Jessica (Team Member) We appreciate you sharing! Managing your energy levels can be challenging. Keep in mind that it's completely okay if you need to adjust plans. Your well-being comes first, and loved ones who truly care will be patient. Although it can certainly be challenging for others to fully understand our limitations and what we deal with, keeping communication open is a great first step. Here is an article that I think you will resonate with: https://myasthenia-gravis.com/living/choosing-compassion. Jodi, Team Member
By just being there to help you , do the things you can't, letting you know its ok .
Thank you for sharing your perspective! It's important for loved ones to create an environment where we feel comfortable and reassured, knowing it's okay to lean on them. Their understanding and encouragement can provide immense emotional support during challenging times. I think you will resonate with the following article: https://myasthenia-gravis.com/living/community-building. Jodi, Team Member
