How can friends and family best support someone with MG?
How can loved ones support and comfort you? What strategies and tips do you have for communicating your needs with family and friends? For any caregivers, what are some ways you help or comfort someone with MG?
I have a husband who is a great help and a good cook, but he is also very social and gone a lot for a job. A friend who lives alone texts or calls every day, so we check up on each other, if we don't hear anything on any given day. It is a nice safety valve.
I mention an MG symptom My sister will always top it with her ailment issues If I’m severely fatigued shes on Deaths doorstep My oldest friend I say my neck muscles are weak can barely hold my head She replies Yeah I get that way too some mornings
You are right. No matter the ailment, no one knows your body and mind like you do.
My advice to MG patients is to carry an identifier that lets people know you have MG. It can be a bracelet, a card in your purse, something to let ones know u have MG.Life is hard 😪 I am a caregiver for someone with Dementia so it's hard 😔 to take care of myself
my heart goes out to you. Being a caregiver and needing support yourself is an extremely tough spot to be in. Do you have any family or friends close by that can help you? Thinking of you, Julie (team member) Thanks for responding I don't have any help I do the best I can
