symtoms
Does anyone get numbness any where on there body? Also does just one side of your body become effected? In June of this year I had a face droop on one side of my mouth it did it 3 times back to back. Since it has happened again. I went into Boston and they said you are having hemi pelagic migraines. Which is VERY RARE. I have been on everything to get the migraines under control and nothing touches them. I also cannot sleep and problem with bladder. So just wondering if anyone has this to! thank you
I’m sorry to hear what you’re going through. It sounds incredibly challenging to deal with those symptoms, especially since they can be so unpredictable and frightening. To confirm, despite the face droop, you have not yet been diagnosed with MG, correct? Have you received a second opinion to confirm the diagnosis of hemi pelagic migraines?
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Numbness and one-sided issues can be really concerning. Numbness is not a characteristic symptom of Myasthenia gravis. However, weakness can cause the face/eyes to droop and the mouth to feel numb. Some individuals experience numbness and tingling, as discussed in this study: https://pmc.ncbi.nlm.nih.gov/articles/PMC7978066/. There is a long list of possible causes of numbness and one-sided numbness, including:
Peripheral neuropathy.
Nerve compression syndromes.
Neuropathic pain.
Ruptured or herniated disk.
Pinched nerve due to arthritis or bone spurs.
Injury to your spinal cord, brain, or nerves.
Carpal tunnel syndrome.
Diabetes.
Infections such as shingles or Lyme disease.
Kidney disease.
Multiple sclerosis (MS).
Arthritis.
Tumor.
Underactive thyroid (hypothyroidism).
Raynaud’s syndrome.
Medications or drug use.
Vitamin B deficiency.
Lack of blood supply.
Abnormal levels of potassium, calcium, or sodium in your body. (https://my.clevelandclinic.org/health/symptoms/21015-numbness).
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It’s tough not being able to get proper rest or having bladder issues as well. Please know that you’re not alone in this. Even though these articles are written from the perspective of those with MG for readers with MG, I think they still may be of interest to you: https://myasthenia-gravis.com/living/urinary-incontinence-solutions & https://myasthenia-gravis.com/living/insomnia-experience.
-Jodi, Team Member
