How to support my son who was recently diagnosed
My name is Gloria. I am a mother of a 26-year-old black male who was recently diagnosed. He’s having a hard time dealing with it his ego his self-esteemMy name is Gloria. I am a mother of a 26-year-old black male who was recently diagnosed. He’s having a hard time dealing with it his ego his self-esteem he fell twice. he fell twice. As a parent, how can I support my son? How can I be there for him? I feel helpless.
Dear Gloria, I have MG, and I am around the same age as your son. I have also struggled with my ego/self-esteem. It's very difficult when your life gets flipped upside down. I remember walking 2 miles the day before my first crisis, then not being able to move my legs the following day. When you're young, it's hard because you feel like you miss out on things other people your age are doing. One thing that helped me was finding alternative activities/fun things to do. My parents have been my biggest supporters, especially when they take the time to listen. They have been very encouraging and told me I am capable of doing great things despite my illness. They have also taught me how to be adaptable and patient when my muscle weakness fluctuates throughout the day, and to be humble and ask for help when needed. They have prayed for me, cried with me, carried me, hugged and held me, drove me everywhere, encouraged me, taught me the importance of rest, reminded me of my strengths, listened to my frustrations, and stood up for me when doctors wouldn't believe my symptoms. Without my parents' help, I wouldn't be where I am today. Gloria, I can already tell you're very sweet and caring; simply being there for your son and encouraging him will make a big difference!
