IVIG Side Effects
IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig).
What rate of flow was the nurse doing? Did slowing it, if that was tried, lessen symptoms?
I had the infusions in the hospital. And most recent this past weekend: Friday. Sat.& sun .
It took 3 hours each
I definitely don't go faster than 125 MAX. I hydrate the day before and take Liquid IV for the two days of infusions, and then I hydrate for a couple more days. I get a small dose of Benadryl, Tylenol, and, I think, a steroid with my infusions. My only side effects are sleepiness and a slight head ache, but it is more like my head feels full. Sometimes, I take Excedrin migraine as needed.
We are deeply grateful for your willingness to take a moment to share your experience. Your insights are incredibly valuable to others who are also dealing with MG. - Jodi, Team Member
no
from Poppy.
