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IVIG Side Effects

IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig).

What rate of flow was the nurse doing? Did slowing it, if that was tried, lessen symptoms?

  1. I was on it for a year. Never had a bad reaction. Then a new doctor switched me to Gammagard. What a nightmare. I have constant liver pain! Hopefully I will be switched back.

    1. After four months, four of my bloodwork tests were lower than they had been and the pharmacy recommended stopping the IVIG infusions even though my neurologist was not concerned. Also, my blood pressure readings were all over the chart. It was decided to stop the infusions and I will only go back on if there is an MG crisis.

      1. Yes

        1. Headache, lower back pain. Nausea.

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