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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...

Tremors and Myasthenia Gravis

Has anyone here started experiencing tremors since their MG symptoms began? If so, where are you feeling them, and how severe are they? Do the tremors coincide with any other...

Unexplained Symptoms that are Not Characteristic MG Symptoms?

What unexplained symptoms do you have that are not characteristic MG symptoms?...

Treatment Question

I have had double vision for around 6 months. I have been tested for MG twice with blood work that came back negative both times. My nuero Opthalmologist is very...

anyone tried injectable Vyvgart Hytrulo?

my doctor has prescribed this as a next step in treating my MG. I started with ocular MG and progressed to general body MG with still lingering effects from ocular...

INSOMNIA

What is safe and effective for insomnia. I have generalized M.G.,double vision and breathing issues. On bi-pap recently after study. Sleep neurologist refuses to prescribe anything. Feel it compromises breathing...

A little denial

Hi, I was diagnosed in January 2025. I have been on Mestinon 60 mg 3 X a day. At the end of November, I started having increased blurred vision and...

Harder to hold head up

I don't know if this is just a temporary thing (as in bad sleep position), but lately I get soreness in my neck or left shoulder blade area after spending...

freezing this winter

Any one else freezing this winter? Read where folks have problems with the heat, but I am having problems with cold. Wife keeps the house about 70, and only time...

How do you handle unsolicited advice about MG?

Have you ever received unsolicited advice about your MG? If so, what was the advice and how did you respond?...

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