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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active yesterday

Fainting after standing up and walking 15 feet

Anyone experience fainting/passing out resulting in falling to the floor? Can you share your experience and if this problem continued or how you prevented it from happening again. Thanks....

Active yesterday

runny nose

I don't have a cold or sinus or allergies. I'm in year one of MG and my nose will not stop running and sneezing often. Drip drip drip my nose...

Active yesterday

I have major symptoms, but was told it is not MG.

I recently had an evaluation with a PT and after reviewing my extensive medical record asked if I had MG. I told her that I’ve been tested several times over...

Active 2 days ago

VYVGART?

I started Vivgart infusions on May 5, 2025 and I’m still taking 10 mg Prednisone & 2,000 mg mycophenolate per day. Pyridostigmine is as needed and take about 1 x...

Active 3 days ago

How Do You Cope With Hot Temperatures?

Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the hot temperatures? When you are outside in the...

Active 3 days ago

Occular MG

My eye lid started drooping one week ago and my other eye double vision. My blood pressure went very high so the ER first assumption was a stroke did ct...

Active 4 days ago

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come out. I've been using catheters on and off...

Active 5 days ago

What are the early signs of glaucoma, and can a regular optician spot them?

Glaucoma is often called the "silent thief of sight" because it typically develops slowly and without noticeable symptoms in the early stages. Some early signs, when they do appear, may...

Active 6 days ago

Vyvgart Hytrulo journey

I want to start a thread to post my experience with Vyvgart Hytrulo as a treatment for gMG. It is not easy to get an understanding of what is required...

Active 6 days ago

Exercizing

What can you do to help with legs being heavy, weak and exhausted....

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