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Read conversations, start a discussion, and connect with others about myasthenia gravis.

What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can provide valuable perspectives for other navigating similar journeys....

Its Been A While

Silly question, for my MG treatment my doctor has me on a temporary high dose of Predisone in and effort to bring my MG under better control as he put...

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Unusual MG Symptoms?

Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which I still have). I had an almost cancerous...

Fatigue/exhaustion in arms and legs

I was diagnosed in December 2022 with MG. It seems that some of the most common and bothersome symptoms I have experienced are exhaustion/fatigue in my arms and legs at...

Sorting out MG and non MG symptoms - balance vs. weakness

context: my diagnosis is only tentative seronegative - but I have had classic MG-type symptoms for over 20 years with no meds prescribed so far. In an effort to better...

Side effects of Mestinon

I have a colostomy. Mestinon causes me to have bloating, pressure and abdominal pain. I am concerned about continuing to use Mestinon. My doctor doesn’t seem to have any other...

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How do you balance exercise and MG?

We all know exercise is a key part of being/getting healthy, but overexertion is also a key part to triggering MG symptoms. Is there any tips or hacks to balancing...

Ear Pain

Has anyone experienced ear pain. The pain is not like an ear ache. It’s more like the outer part of your ear. My ENT Has treated it with drops and...

Ocular MG

I was just diagnosed with MG my symptoms are double vision and my eyeballs going to the left. My eyeball literally goes halfway inside my head. Hard to explain. It...

How do caregivers know the treatment provided by physicians is the best and most correct?

My husband of 53 years passed away from MG after doctors fumbled around attempting to find ways to treat this disease, putting him through months of in-and-out of the hospital...

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