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VYVGART?

I started Vivgart infusions on May 5, 2025 and I’m still taking 10 mg Prednisone & 2,000 mg mycophenolate per day. Pyridostigmine is as needed and take about 1 x per month - just when I have stress.
Stresses happen when I’m involved with intense conversation.
I start second round of VYVGART July 8.
Nurse said most see relief at 9 treatments.
Is anyone else doing it?
Symptoms: shortness of breath, weak right eye muscles (normally no droop), clumsy gait, tiredness.

  1. I just started my second round this month (July). Going for my third injection this Wednesday. I find that it can burn a bit, so I rub on some lidocaine in the area if injection (either side of the navel) about an hour before. It seems to help a lot.

    1. I will.
      One of the side effects is a rash around the injection site.
      I did have that week before last. Lasted for about 4 days then reoccurred last week for 1 day.
      It was similar to heat rash. Didn’t itch no other reactions. Just rash.
      Initially, after the first two injections I felt great! Like I’d come out of a black hole.
      The past 5 weeks haven’t had the same high and the feeling is kind of one of stableness, neither high nor low.
      Waiting for the better.

      1. Thanks for your post. I am considering Vyvgart and tracking the progress of others. Please keep posting as your treatment continues.

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